Switching prednisolone

Well, here I am again folks, it's been a while.

After having the best blood results I have had in a long time in February. I started to get the impression I was struggling with my blood, then on Saturday I was in Accident & Emergency, with a big old relapse.

I was wondering if it's just coincidence but my three worst relapses were all June, July time. Can sun exposure kick off autoimmune reactions. I live in the UK we don't see warm sunshine much but I like to be in it when it comes. Am I clutching at straws, still looking for answers.

Really Struggling this time, I am back on high dose steroids and I couldn't cope with them last time. I might ask to switch off it, can you switch off it when you have started, I should have asked the haematologist but will discuss next appointment.

Hope all you regulars are doing well.

John:

Yes, you can ask to treat with something other than steroids. Many of us do. You'd still have to taper, but maybe could do a fast one depending on how long you've been on it.

Some people have noticed that platelet drops occur in the summer. Some link it to allergies, chlorine in pools, etc....I've never heard of the sun triggering an ITP relapse though. UV rays can trigger Lupus and/or exacerbate it, but I haven't seen a link between UV rays and ITP.

My worst crashes have all been in September. Like you, I searched for a reason. Thought it might be pesticide residue from my heavy summer intake of non-organic fruit. So, I experimented eating less fruit and organic only when I did have some. It made no difference, but I've become resigned to it now. I'm convinced that knowing the reason won't change the result, at least for me.
Hope you can find a way to treat without steroids. Wishing you a speedy improvement!

Thanks for the replies.

Janet, your right finding the reason, will not change the result. If the medical profession still get baffled by this condition, I sure am not going to get to the bottom of it!

I am just fed up that it's all back again, but that's the roller coaster I guess.

Sandi - I will see about getting a different drug, I only started it Saturday. I was on it just short of 3 months last time. It was horrendous I thought I was going mad, changed my personality I'd argue with my own reflection.

Ha, your own reflection! :lol: I get it!

We all hate Prednisone, John. Most get sick of it sooner or later and try other things. Are you familiar with other options?