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Nplate side effects anyone else?

  • Kelirae24
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  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
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9 years 9 months ago - 9 years 9 months ago #53827 by Kelirae24
Nplate side effects anyone else? was created by Kelirae24
Whenever I get a high dose of nplate over 400 i get a rash can barely move my neck and feel awful, I've expressed this with my dr and actually told him I would no longer go over 300 was just wondering if anyone else had this kind of response it lasts about a week and I'm absolutely miserable and my platelets are 309 I'd rather a smaller dose and be way lower

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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9 years 9 months ago #53830 by Sandi
Replied by Sandi on topic Nplate side effects anyone else?
Keli - Seems like you are forever fighting with that Dr. Maybe we should fire him already! ;) He tends to over dose you.

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  • Kelirae24
  • Topic Author
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  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
More
9 years 9 months ago #53833 by Kelirae24
Replied by Kelirae24 on topic Nplate side effects anyone else?
I wish I could but I've been through every dr in my area lol I had an awesome one but he moved to Tampa was so sad about that one!

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