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Question for Sandi

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10 years 2 months ago #52035 by alisonp
Question for Sandi was created by alisonp
Hi Sandi
I need to tap your medical research on behalf of a friend who is considering a splenectomy for her 9 year old son who has had itp for about 7-8 years.
I think I remember that there are some clotting disorders that go along with ITP sometimes.....what are they and can you test for them?
Does a splenectomy make problems more likely if you have one of these disorders?
Thanks in advance ☺

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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10 years 2 months ago #52036 by Sandi
Replied by Sandi on topic Question for Sandi
The main clotting disorder that is common with ITP is APS and yes, you can test for it...simple blood test. However, just having ITP or a splenectomy itself can lead to a greater risk of clotting.

www.medpagetoday.com/MeetingCoverage/ASHHematology/12103

www.bloodjournal.org/content/121/23/4782.abstract?sso-checked=true

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  • EmilyK
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  • Diagnosed jan 2015 at age 50 with 13,000 platelets.
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10 years 2 months ago #52049 by EmilyK
Replied by EmilyK on topic Question for Sandi
Is there a reason not to try NPlate or Promacta before taking such an extreme measure as a speenectomy for a child?

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10 years 2 months ago #52055 by alisonp
Replied by alisonp on topic Question for Sandi
Promacta didn't work and he's on n-plate at the moment but his mum worries about the longer term effects of it.

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10 years 2 months ago #52056 by alisonp
Replied by alisonp on topic Question for Sandi
Got to be honest here......I am NOT in the pro-splenectomy camp!!

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Platelet Disorder Support Association

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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.