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Prednisone taper

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10 years 5 months ago #50779 by Judy14
Prednisone taper was created by Judy14
68 year old female with primary ITP for 2 years. Only thing that seems to work is IVIG every 6-8 weeks with daily 5mg prednisone (60mg prednisone with taper to 3, dex pulse, rituxan all failed).
Hema says 5mg long term is safe, but I still want off. Last time with taper down to 1mg, my count dropped to 4 so he doesn't want to change it. That taper was dropping slightly every 2-3 weeks for a total of about 7 months. I wonder about a longer taper of maybe 4-6 weeks or more to drop 1/2 or 1 mg. Any suggestions/experience? Thanks.

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10 years 5 months ago #50780 by Ann
Replied by Ann on topic Prednisone taper
If it were me I'd get off the steroids as quickly as possible and try something else. If you can't get the TPOs, Nplate or Promacta then CellCept would be better long term than steroids which are harmful whatever the dose.
The following user(s) said Thank You: Judy14

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  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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10 years 5 months ago - 10 years 5 months ago #50782 by mrsb04
Replied by mrsb04 on topic Prednisone taper
I agree get off the steroids

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Platelet Disorder Support Association

Platelet Disorder Support Association
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.