Platelet Disorder Support Association

Join Us:

Membership Matters

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Rituxan is making me sick...

More
10 years 6 months ago #49695 by bethieofva
Rituxan is making me sick... was created by bethieofva
I know, I know, it is not suppose to have side affects or very few, but it is kicking my butt. I have had only one treatment with three more to go. I feel terrible. I feel flu like, body aches, jittery and GI issues. Whoa. I didn't expect anything. Anyone else?
49 yo recently diagnosed with ITP.

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
10 years 6 months ago #49696 by Sandi
Replied by Sandi on topic Rituxan is making me sick...
Some people do have side effects. Feeling flu-like is one of them, but it doesn't usually last long. You should call your doctor and discuss it with him. If it is not tolerable for you, you might have to skip Rituxan and move on to something else.
The following user(s) said Thank You: bethieofva

Please Log in or Create an account to join the conversation.

More
10 years 6 months ago #49700 by mac
Replied by mac on topic Rituxan is making me sick...
My sister had horrible side effects including those you mentioned. It continued to get worse and she eventually stopped treatment not soon enough in my opinion. It was determined that she was allergic to the medication. Prayers you feel better soon.
The following user(s) said Thank You: bethieofva

Please Log in or Create an account to join the conversation.

  • EmilyK
  • Offline
  • Diagnosed jan 2015 at age 50 with 13,000 platelets.
More
10 years 6 months ago #49865 by EmilyK
Replied by EmilyK on topic Rituxan is making me sick...
Bethie
How are you doing? Did the rituxan treatments go ok after the first one?
Emily

Please Log in or Create an account to join the conversation.

More
10 years 6 months ago #49982 by bethieofva
Replied by bethieofva on topic Rituxan is making me sick...
Yes, much better. I have had three now. They make me feel not great for a few days after. I am not sure if they will help, yet. My numbers went up then back down. Gosh, who knows?

Thanks for asking. How are you?
49 yo recently diagnosed with ITP.

Please Log in or Create an account to join the conversation.

  • EmilyK
  • Offline
  • Diagnosed jan 2015 at age 50 with 13,000 platelets.
More
10 years 6 months ago #49985 by EmilyK
Replied by EmilyK on topic Rituxan is making me sick...
I hope the rituxan works for you. Sadly it was of no use to me. I am on promacta now and still working out the dose, but it has been nice to be symptom free and to feel like ther might be light at the end of the ITP tunnel. We will see! Nice to hear from you.
The following user(s) said Thank You: bethieofva

Please Log in or Create an account to join the conversation.

  • EmilyK
  • Offline
  • Diagnosed jan 2015 at age 50 with 13,000 platelets.
More
10 years 6 months ago #50477 by EmilyK
Replied by EmilyK on topic Rituxan is making me sick...
Bethie
How are you doing?
Emily

Please Log in or Create an account to join the conversation.

You’re not alone. We have answers! Contact PDSA to connect with life altering information, resources and referrals. 440.746.9003 (877.528.3538 toll-free) or PDSA@PDSA.org.

Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.

© Copyright 1997 - 2026, Platelet Disorder Support Association. All rights reserved.

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.