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Rituxan...maybe it's me, but...

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10 years 6 months ago #49631 by bethieofva
Rituxan...maybe it's me, but... was created by bethieofva
I don't feel great. I had my first treatment Thursday with a reaction. I felt wound up that evening. Gosh, last evening and today I feel like my heart is jumping. It feels like my whole body is rocking like I drank several pots of coffee. This stuff does affect you or so I believe. I have three more to go. Yuk.

Anyone else feel or felt odd on this treatment?
49 yo recently diagnosed with ITP.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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10 years 6 months ago #49632 by Sandi
Replied by Sandi on topic Rituxan...maybe it's me, but...
Did you have Solumedrol (steroid) as a pre-treatment? Most do. If so, it's possible that you are experiencing the side effects of that. Those are odd side effects for Rituxan.

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10 years 6 months ago #49635 by bethieofva
Replied by bethieofva on topic Rituxan...maybe it's me, but...
Not that I am aware of, just Tylenol and Benadryl.
49 yo recently diagnosed with ITP.

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  • EmilyK
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  • Diagnosed jan 2015 at age 50 with 13,000 platelets.
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10 years 6 months ago #49637 by EmilyK
Replied by EmilyK on topic Rituxan...maybe it's me, but...
I did not have any reaction to the rituxan so I cannot add any insight. However, it seems like people who do have a side effect seem to get some positive response from rituxan. Hopefully that will be the silver lining. What was your count before the treatment?

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10 years 6 months ago #49638 by bethieofva
Replied by bethieofva on topic Rituxan...maybe it's me, but...
I was 52. I hope it is a silver lining. I will have three more treatments. I had a bone marrow done this past Wednesday, so waiting to hear those results, too.

Hope you are well!!
49 yo recently diagnosed with ITP.

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10 years 6 months ago #49640 by eklein
Replied by eklein on topic Rituxan...maybe it's me, but...
Some people have a paradoxical reaction to Benadryl, so that's possible too. I find that with benadryl I feel sedated but then after a few hours I feel agitated.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
The following user(s) said Thank You: bethieofva

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10 years 6 months ago - 10 years 6 months ago #49645 by ben23
Replied by ben23 on topic Rituxan...maybe it's me, but...
I had my 2nd Rituxan treatment last week. I had those same reactions to Rituxan on my first and second treatment... feeling tired, heart beating too fast. Other reactions I've had: sore throat during and after treatment, feet curling every morning on their own(feels like locking up).

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10 years 6 months ago #49654 by bethieofva
Replied by bethieofva on topic Rituxan...maybe it's me, but...
Yes! So maybe it's not just me.
49 yo recently diagnosed with ITP.

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Platelet Disorder Support Association

Platelet Disorder Support Association
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Cleveland, OH 44141
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.