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One of the lucky ones.

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10 years 8 months ago #48860 by brizee
One of the lucky ones. was created by brizee
I was diagnosed 8 months ago. Platelets were too low to measure. Responded well to Promacta. I am doing 12.5 mg every other day down from 75 every day at the start. Platelets vary from 180 to 210. Also take two eyedroppers of the papaya leaf extract every day. The only reminder that I have ITP is the bloodwork and the pills every other day. Hoping I'm in remission.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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10 years 8 months ago #48861 by Sandi
Replied by Sandi on topic One of the lucky ones.
That is great! You do seem to be one of the lucky ones. Just curious, what treatments did you try before Promacta?

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10 years 7 months ago - 10 years 7 months ago #48917 by brizee
Replied by brizee on topic One of the lucky ones.
They went through the protocol with predinsone, ivig, dex., platelet transfusions, whole blood (I was getting anemic). Promacta is what they tried next, and it worked. Then we decided to taper the dose, all the while I have been taking two eyedroppers of the papya extract that people have talked about. I'm afraid to stop that.

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10 years 7 months ago #48936 by Winnifred
Replied by Winnifred on topic One of the lucky ones.
Here's to never having lower platelets again!

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10 years 1 month ago #52253 by brizee
Replied by brizee on topic One of the lucky ones.
I thought I would post an update. On my second 16 oz bottle of papaya extract. Twoeyedropper a day mixed in any beverage, Last test was 165, going in every month now for bloodwork.
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Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.