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Trying to help

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10 years 11 months ago #46417 by tellyshunter
Trying to help was created by tellyshunter
My wife had ITP. We having been battling this for 10 years now. She has all of the treatment plans the Splenectomy, Chemotherapy, IGIV and every Dr favorite prednisone. She has had several Bone Marrow Biopsy. Now she has to do another one. I'm trying to help what can I do?

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10 years 11 months ago #46419 by Rob16
Replied by Rob16 on topic Trying to help
Telly,

Make sure she is in good medical hands. Tell us where you are located and perhaps someone in your area can help find her a doctor she can trust.

Do you know why she has had several bone biopsies? Are there other problems in her blood work? Unless something else is odd in her blood work, biopsies are not routinely given for ITP.

Has she been tested for the various infections that can cause ITP?
How low are her platelets?
The next step would probably be Promacta or NPlate, which are drugs to stimulate production of platelets.

My wife also has ITP and I know how hard it can be and how responsible you feel for her care. Hang in there!

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Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.