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Looking for new plan

  • amberyard
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  • Lowest count 0-1k highest count 1,247,000 11/2/21. 189,000 N-Plate 527 Weekly CBC
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11 years 3 weeks ago #45690 by amberyard
Replied by amberyard on topic Looking for new plan
Ok been sooooo busy with work... after IVIG's topped out at 132k then 54k and last week 38k. Recheck on Thursday and regular doctors on Wednesday, going to talk about CT (for headaches). Back on pred 30mg, a d I just lost 5lbs from the week before and that same day they up the pred.

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  • amberyard
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  • Lowest count 0-1k highest count 1,247,000 11/2/21. 189,000 N-Plate 527 Weekly CBC
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11 years 3 weeks ago #45691 by amberyard
Replied by amberyard on topic Looking for new plan
Oh and the pred (never had this problem before) getting very aggressive, very easily. I have an rx for Xanax (which I'm going to see gp on Wednesday to talk a about this issue).

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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11 years 3 weeks ago #45695 by Sandi
Replied by Sandi on topic Looking for new plan
I forgot to mention the fact that prior to the 9 years of being treated for Lupus, I went through 8 years of ITP treatments. That has added to the problems, I'm sure. None of us knows what the future holds, so thinking that you have to do whatever it takes to fix ITP can contribute to any future problems that you might end up with. Yes, people with ITP have to treat at times, just be sure that it's not treatment overkill trying to maintain normal counts.

Dee Dee, I hope your friend becomes more of an advocate for herself. You're a good friend for trying to make that happen.
The following user(s) said Thank You: DeeDee Marie

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  • amberyard
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  • Lowest count 0-1k highest count 1,247,000 11/2/21. 189,000 N-Plate 527 Weekly CBC
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11 years 3 weeks ago #45699 by amberyard
Replied by amberyard on topic Looking for new plan
I just want to get off all this medications

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Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.