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Prednisone tapering

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11 years 5 months ago #43370 by marosa
Prednisone tapering was created by marosa
Hi all have had 4treatments of rituximab back in April also 20 mg prednisone haven't have a great response with rituximab my consultant started tapering prednisone by middle of July I was told to take 5mg every other day which is when I feel problems kicked in my hair began shedding which is quite alarming as I have always had smooth healthy hair it's now dry and brittle has anyone else had this problem grateful for any advice thanks kind regards marosa

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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11 years 5 months ago #43374 by Sandi
Replied by Sandi on topic Prednisone tapering
Yes, hair loss is common while tapering from Prednisone. It will stop eventually.
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  • Kelirae24
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  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
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11 years 5 months ago #43405 by Kelirae24
Replied by Kelirae24 on topic Prednisone tapering
Yes unfortunately steroids are awful! I chose to just stop one day cold turkey years ago Bc of weight gain flushed all my prednisone down the toilet my hair fell out in the front I was hallucinating and the headaches were horrible took months for my hair to come back but it did. I hate steroids! :)
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11 years 5 months ago #43413 by Katsim
Replied by Katsim on topic Prednisone tapering
I stopped steroids in march and my hair has been very thin since then. It's just beginning to thicken out again now. I recommend frequent hair cuts to style it & frequent hot oil or other conditioning treatments. Has really helped my hair - that & time.

Interestingly I started going grey before my itp diagnosis. The whole time I was on pred I didn't get one new grey hair!!! It's the only up side I've had to the steroids!! Greys are back in abundance now so it's back to the hair dye .
Lowest count 1. Highest count 207 (ivig) Indium scan showed predominantly splenic destruction. No meds currently, just seeing how things go.

"Life isn't about waiting for the storm to pass - it's about learning to dance in the rain".
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11 years 5 months ago #43446 by marosa
Replied by marosa on topic Prednisone tapering
Thanks for all the replys how long does this last it's so distressing it must be the worst drug I've takin on this rollercoaster of a journey my consultant looked at me as if I was mad when I told her my hair was shedding said she'd never heard of anyone having hair loss with steroids thanks agin all salmagal

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11 years 5 months ago #43447 by marosa
Replied by marosa on topic Prednisone tapering
Hi katsim I have silver grey hair so don't mind about colour it's more the hair loss my only son getting married next May so hoping alls fine by then thanks for reply marosa

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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11 years 5 months ago #43448 by Sandi
Replied by Sandi on topic Prednisone tapering
Prednisone can stay in your system for a while, and it messes with hormones. It's kind of like pregnancy hair loss. It should get better a few weeks after you stop the drug.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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11 years 5 months ago #43449 by Sandi
Replied by Sandi on topic Prednisone tapering
www.wisegeek.org/what-is-the-connection-between-prednisone-and-hair-loss.htm


Try using lots of moisturizer. I use Agadir Argon Oil on my hair to keep it conditioned. Some Argon Oils are only silicone which can dry hair out even more, so you have to make sure it's real argon oil. Agadir is and I get it from Amazon.
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  • midwest6708
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  • ~ Janet ~ Diagnosed Sept. 2008
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11 years 5 months ago #43457 by midwest6708
Replied by midwest6708 on topic Prednisone tapering
I've been on prednisone for one year. I have about half the hair I normally do. I'm so thankful it's normally thicker than average, or else I'd be bald. My doc didn't seem to know it can be a side effect, either. He wanted to test my thyroid levels until I told him I just had them done the month before and were good.
There are MANY things doctors have no clue about. :dry:
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11 years 4 months ago #43593 by marosa
Replied by marosa on topic Prednisone tapering
Hi sandi will try Agadir oil wondering if it would help to have my hair cut short thanks for the reply marosa

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