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Does anyone get stiff neck with ivig?

  • Kelirae24
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  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
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11 years 8 months ago - 11 years 8 months ago #41653 by Kelirae24
Does anyone get stiff neck with ivig? was created by Kelirae24
Ive had ivig on and off for years but now I'm getting it once a week due to pregnancy so it's pretty much my only option. I've been getting horrible stiff neck after treatment I can barely move it. I've been using heating pads and icy hot patches it helps but does anyone know what causes the side effect?

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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11 years 8 months ago #41654 by Sandi
Replied by Sandi on topic Does anyone get stiff neck with ivig?
No headaches? Could possibly be aseptic meningitis, but usually people feel nauseated and have bad headaches as well.

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11 years 8 months ago #41655 by Rob16
Replied by Rob16 on topic Does anyone get stiff neck with ivig?
Ellen had horrible aseptic meningitis - horrible neck ache and headache but not nausea as I recall, although that is a symptom.

Meningitis is an inflammation of the membrane surrounding the brain and spinal chord. I can't even hazard a guess why IVIG sometimes causes this inflammation.

If aseptic (meaning without germs) meningitis is caused by a drug, like IVIG, it is sometimes called "chemical meningitis".

Sandi, does pre-treating (with benadryl?) help ward off aseptic meningitis?

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  • Kelirae24
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  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
More
11 years 8 months ago #41657 by Kelirae24
Replied by Kelirae24 on topic Does anyone get stiff neck with ivig?
I get 50 mg of Benedryl before do you think slowing it down a bit would help? Because u know I didn't used to get this. They are giving me the ivig at a rate of 240 maybe lowering it will help
I will definately ask, I do get headaches sometimes and also whooshing in my one ear that drives me nuts I can usually take the headaches but this neck pain is really not fun I'm extremely uncomfortable

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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11 years 8 months ago #41659 by Sandi
Replied by Sandi on topic Does anyone get stiff neck with ivig?
Yes, slowing it down might help. Also, drink a lot of water the day before, during, and after the infusion.

Rob, I don't know if Benedryl prevents it, but it might help to control it.

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