77 yr old adult female life long ITP

I'm a 77 yr old female with life long ITP. Splenectomy 1943; laparoscopic splenectomy for accessory spleens 2008. Platelet count stable around 105-107,000. Lost 2 male babies, full term, diagnosed
with neuroblastoma unknown etiology; 1 full term healthy daughter; 1 adopted son.

Health pretty good - asthma, aspergillosis, high BP, high cholesterol

Very active; love to read and travel; faith, family & friends huge support system

There are many worse problems than ITP - I consider each day a blessing!

Hope this post will be encouraging to others!

Nice to meet you.

It must have been really scary for your parents to consider removing the spleen of a child so young! I'm happy it seemingly worked well for you. Did you have any relapses in the intervening years, or has it been pretty much smooth sailing since?

I'm 64, was diagnosed 5 years ago. My count yesterday was 4. You can imagine that I'm drooling over your sustained counts above 100. That said, I agree whole-heartedly that there are worse things than ITP. I can tell that just by looking around the waiting room at each hematologist visit.

Did both splenectomies result in safe counts? Have you had other treatments for the ITP?

We need more people like you around. To show that life does go on after ITP.

Thank you for sharing! We def do need people like you on here