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Promacta Tapering?

  • amberyard
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  • Lowest count 0-1k highest count 1,247,000 11/2/21. 189,000 N-Plate 527 Weekly CBC
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12 years 3 weeks ago #39102 by amberyard
Promacta Tapering? was created by amberyard
Just wanted to know how Promacta is tapered? Right now I'm on 75mg (82k) would love to get off Promacta since it is very expensive. But just wondering how the taper is done?

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  • server
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  • newcreationchangingdaily
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12 years 3 weeks ago #39110 by server
Replied by server on topic Promacta Tapering?
You can reduce the dosage if it is keeping your counts up but once you stop taking it, unless there is an act of God, your counts will drop again.
My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen

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  • amberyard
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  • Lowest count 0-1k highest count 1,247,000 11/2/21. 189,000 N-Plate 527 Weekly CBC
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12 years 3 weeks ago #39113 by amberyard
Replied by amberyard on topic Promacta Tapering?
Only will try to taper to see where counts go.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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12 years 3 weeks ago #39125 by Sandi
Replied by Sandi on topic Promacta Tapering?
Have you discussed this with your doctor?

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12 years 3 weeks ago #39128 by eklein
Replied by eklein on topic Promacta Tapering?
Server, actually we are seeing reports of people getting off nplate and promacta and maintaining counts. It is not a for sure thing that there will be a drop. That was the initial thinking but new evidence is emerging.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

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  • amberyard
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  • Lowest count 0-1k highest count 1,247,000 11/2/21. 189,000 N-Plate 527 Weekly CBC
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12 years 3 weeks ago #39161 by amberyard
Replied by amberyard on topic Promacta Tapering?
Seeing doctor 1/16 but just want to know how it is done, weeks? I am trying to re up the charity program but it isn't looking good and insurance is way too high but time will tell. Right now the program ends on the 31st and after that I will have to get my family doctor to do CBC's and skip on the specialist (self pay to see her $175 each time). So I just don't know where it will leave me and the Promacta?

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