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Nplate question

  • Kelirae24
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  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
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12 years 2 months ago #37972 by Kelirae24
Nplate question was created by Kelirae24
Hey guys I have a question I was on nplate for a year when I had a stroke after recovery and no other treatments working I have been back on nplate for a year now again my question is shouldn't I have received a bone marrow biopsy by now? I recently changed drs because mine left the country :( i have asked my new doc a couple times and he said if my blood work changes in anyway he will. Is this normal? I thought it was supposed to be done yearly any helps appreciated thanks :)

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12 years 2 months ago #37976 by Ann
Replied by Ann on topic Nplate question
No, they look at the blood on a slide under the microscope and if any cells change shape or look odd then they will worry but if all is normal then it's fine. It sounds as if they are keeping a close watch so no need to worry.

What are your counts? Friend of mine is in a similar position. She had blood clots while on nplate and stopped it but has now started again. It's a balancing act and must be worrying.

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  • Kelirae24
  • Topic Author
  • Offline
  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
More
12 years 2 months ago #37979 by Kelirae24
Replied by Kelirae24 on topic Nplate question
My counts are all over the place I get anywhere from 1.5 mg-2mg per kilo when I had my stroke I was at 3 and my dr was trying to get my platelets tI a normal range which succeeded I was anywhere from 150 -699 which caused the stroke I now go anywhere from 20-100 depending on the week as long as I'm over 20 I'm comfortable doing whatever because without any treatment I would be in the hospital with counts of 1. Nplate is good but I'm still scared to death of it

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12 years 2 months ago #37983 by Ann
Replied by Ann on topic Nplate question
I was aiming at counts between 30 and 50 but after a couple of years counts started going above 100 so I have stopped using it. Will see where I am next week but I'm sure I'm okay, so not going to start again at least for a while. I too used to have counts of 1 without treatment but not now it seems.

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  • Kelirae24
  • Topic Author
  • Offline
  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
More
12 years 2 months ago #37992 by Kelirae24
Replied by Kelirae24 on topic Nplate question
That's awesome ann I just want a remission at least for awhile I'm terrified to have kids but want to so bad

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12 years 1 month ago #38361 by Mcochran
Replied by Mcochran on topic Nplate question
K24-- did you ever have blood in your urine following Nplate injection? Perhaps with just the initial injection? My wife got her first ever inject Sunday afternoon and by the middle of the night was having blood in her urine.

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12 years 1 month ago #38382 by Vdeutsch85
Replied by Vdeutsch85 on topic Nplate question
I'm just curious about what her count was upon injection. I was on Nplate for about 6 months with the only side effects being achiness.

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12 years 1 month ago #38398 by Ann
Replied by Ann on topic Nplate question
According to the other thread, her count was under 5 so blood in the urine will be from the low count and not the injection. Also Nplate takes 4 or 5 days to start working after the injection so you need patience. Even at my worst, I only ever had blood tests done weekly on Nplate. No point in doing them more frequently.

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12 years 1 month ago #38412 by Mcochran
Replied by Mcochran on topic Nplate question
Yep, I think she was at 2 when she got the first injection on Sunday afternoon.

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12 years 1 month ago #38414 by Vdeutsch85
Replied by Vdeutsch85 on topic Nplate question
Yes unfortunately you will have to be patient for Nplate to kick in. Do you know what the dose was?

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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.