What to do?!?! time is running out...

Counts today 105k, I do great with dex. The doctor talked about taking my spleen out, this is my second doctor. The first one jumped the gun and talked about it the 5 appointment. I have seen this doctor since the first of the year. We have tried lots of medications. So I am getting counts re checked next Wednesday and starting Rituxan (again) the following Wednesday. Doctor said he doesn't like the autoimmune suppressants drugs.

So here is my problem, right now I am approved at 100% with the hospital. So they will cover everything but the expense of the surgeon ($1000-2000) which I can cover. The charity program end 1/26/14 and if I have insurance by then the co-pay will be more than the cost of the surgeon. And I am sure I will have to wait 6 months after getting insurance to have the surgery.

I can re apply for the charity program, but the only way is to go to the ER again. So that mean I would have to let my counts drop and go to ER. Then they will put me in the hospital and get my counts up then send me home. It takes time to get approved and that is if I get approved. My husband has found a job, it is not much money but it helps. So I don't know if I will every be able to get the 100& again.??

Wait - why are you taking Rituxan again? It didn't work at all the first time, is that correct? Also, it is an immune suppressant which you said your doctor doesn't like?

Are you close to getting a job with insurance? I don't think you would have to wait six months, not with most insurance programs I've seen.

Maybe your counts will stay up. Or can you live with lower counts? I forget, do you have bleeding?
Erica

Erica, The way insurance works here (Amber and I are both in Georgia) is that you have to prove you have been covered by insurance in order to not have a long waiting period for preexisting conditions. I don't know how or when "Obamacare" is going to change that, but just last week my daughter had to prove "creditable coverage" for her new policy at work.

Yep, I had to do the 'creditable coverage' thing last year when I changed insurance.

IIRC; The ACA (Obamacare) has so far only addressed preexisting conditions for those 19 and under.
Supposedly, on 01-01-14, that will kick in for the rest of us (over 19).
I'm still unsure who decided that 'having insurance' automatically means you 'have health care'.
Seems like a cart-before-the-horse proposition....but what do I know?
.

I guess all rules and regulations obtaining Obama care beginning starting in January will be posted by oct.1. That is what I was told at conference by the patient advocacy alliance.