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New recommendation for Promacta (Revolade)

  • karenr
  • Topic Author
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  • Diagnosed in 2000, at 59, after being on moderately high doses of NSAIDs for arthritis. Splenectomy and rituxan both failed (2004). Did well on prednisone till summer 2018--then terrible reactions. Promacta since 11-19.
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12 years 6 months ago #34977 by karenr
New recommendation for Promacta (Revolade) was created by karenr
Britain's National Institute for Clinical Excellence has finally come out in support of Revolade (Promacta, eltrombopog) for ITP patients who meet certain criteria. Here are two links to the press releases. The second link says you need to be a medical professional, but I clicked "yes," and it didn't ask for my credentials!

www.pharmiweb.com/pressreleases/pressrel.asp?ROW_ID=77206#.UfBoDOAvMqY

www.pharmacyeurope.net/default.asp?title=NICE_recommends_Revolade®&page=article.display&article.id=30163

When my hematologist suggested I try Promacta, I told him I was waiting for NICE's report, so I'd have more info to help me decide. Now I have a little more.

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12 years 6 months ago #34985 by Ann
Replied by Ann on topic New recommendation for Promacta (Revolade)
I'm not sure that NICE recommendations are the best to go with as NICE bases their decisions on cost effectiveness and has only approved it because the manufacturer will give the NHS a discount. Fist time the manufacturer applied, the discount wasn't forthcoming and they were refused.

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  • karenr
  • Topic Author
  • Offline
  • Diagnosed in 2000, at 59, after being on moderately high doses of NSAIDs for arthritis. Splenectomy and rituxan both failed (2004). Did well on prednisone till summer 2018--then terrible reactions. Promacta since 11-19.
More
12 years 6 months ago #35011 by karenr
Replied by karenr on topic New recommendation for Promacta (Revolade)
Ah, thank you, Ann, for enlightening me.

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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.