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Pred withdrawal or cellcept side effect?

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12 years 6 months ago #34795 by Katsim
Pred withdrawal or cellcept side effect? was created by Katsim
Hi all

I'm hoping one of you experienced ITP-ers can help. I stopped prednisolone 9 days ago - cold turkey. I was only taking 5mg a day, but have been on them since dec 6th last year - no breaks.

I started cellcept (mycophenolate) 9 days ago and I'm now on 750mg twice a day.

My symptoms are: feeling tired (assuming withdrawal), feeling short of breath (assuming withdrawal) and I have a weird and very, very itchy rash on my neck. It's red, and flares up , then goes down. Some moments of the day are redder and more itchy than others. There seem to be a couple of very small, white, raised areas of skin in there too. It's driving me nuts!! I'm going to visit a doctor to get it looked at with all the warnings that cellcept increases the risk of skin cancer, just to be safe.

Anyone else had any similar symptoms? It's the rash that's really bothering me. Did it take long to get over the pred withdrawal?

Thanks, kat :-)
Lowest count 1. Highest count 207 (ivig) Indium scan showed predominantly splenic destruction. No meds currently, just seeing how things go.

"Life isn't about waiting for the storm to pass - it's about learning to dance in the rain".

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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12 years 6 months ago #34797 by Sandi
Replied by Sandi on topic Pred withdrawal or cellcept side effect?
Well, some of them sound like Prednisone withdrawal...the fatigue and shortness of breath. The rash could be due to CellCept, but I wouldn't know for sure. I doubt you'd get skin cancer that fast due to CellCept, but it could be an allergic reaction. Best to see the doctor.
The following user(s) said Thank You: Katsim

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12 years 6 months ago #34840 by Katsim
Replied by Katsim on topic Pred withdrawal or cellcept side effect?
After you've mentioned allergic reaction, I've realised that the rash isn't so bad after I've taken my antihistamine (for hayfever). Have just emailed my consultant.

Thanks sandi :-)
Lowest count 1. Highest count 207 (ivig) Indium scan showed predominantly splenic destruction. No meds currently, just seeing how things go.

"Life isn't about waiting for the storm to pass - it's about learning to dance in the rain".

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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12 years 6 months ago #34845 by Sandi
Replied by Sandi on topic Pred withdrawal or cellcept side effect?
Good idea! I hope you figure out what it is!

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12 years 6 months ago #34854 by eklein
Replied by eklein on topic Pred withdrawal or cellcept side effect?
It could be that the prednisone was suppressing some allergic reaction and now it is causing you problems without the prednisone.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

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12 years 6 months ago #35183 by Katsim
Replied by Katsim on topic Pred withdrawal or cellcept side effect?
Seems is was a cough/bug. Hubby and daughter had the cough too but not the rash. Has all gone away now.

Bizarre!!

But thought I should update :-)
Lowest count 1. Highest count 207 (ivig) Indium scan showed predominantly splenic destruction. No meds currently, just seeing how things go.

"Life isn't about waiting for the storm to pass - it's about learning to dance in the rain".

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  • dru
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  • I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
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12 years 6 months ago #35185 by dru
Replied by dru on topic Pred withdrawal or cellcept side effect?
Glad you are feeling better!

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12 years 5 months ago #35312 by Katsim
Replied by Katsim on topic Pred withdrawal or cellcept side effect?
I was.

Got a count of 13 today though :(

So now I feel crap!
Lowest count 1. Highest count 207 (ivig) Indium scan showed predominantly splenic destruction. No meds currently, just seeing how things go.

"Life isn't about waiting for the storm to pass - it's about learning to dance in the rain".

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