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A word of advice about Promacta

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12 years 6 months ago #34399 by beaky22
A word of advice about Promacta was created by beaky22
I wanted to make this post just as a warning to everyone who is taking Promacta or thinking about starting it... ask your hematologist to test you for lupus anticoagulant before taking the drug.

I started taking Promacta on June 5th. On June 16th, I was in the hospital with a dural sinus venous thrombosis (aka a blood clot in my brain). It was determined to be from a perfect storm of being lupus anticoagulant positive and on Promacta. I don't want anyone else to deal with what I've dealt with the past few weeks so if you can stop it before it happens, the better for you.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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12 years 6 months ago #34400 by Sandi
Replied by Sandi on topic A word of advice about Promacta
I'm sorry to hear that. Thanks for posting. The Lupus Anticoagulant is one of the antibodies for Antiphospholipid Syndrome (APS, for those who do not know). I hope your recovery was not too bad.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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12 years 6 months ago #34402 by Sandi
Replied by Sandi on topic A word of advice about Promacta
Just wondering, what were your counts when you had the clot?

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12 years 6 months ago #34405 by beaky22
Replied by beaky22 on topic A word of advice about Promacta
My platelets were at 90 thousand

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Platelet Disorder Support Association

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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.