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Promacta Question

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12 years 8 months ago #33115 by Slammed
Promacta Question was created by Slammed
I will be starting Promacta tomorrow, at 50mg. How soon should I see a raise in my count? Thanks!

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12 years 8 months ago #33224 by heyseuss
Replied by heyseuss on topic Promacta Question
if memory serves correct, i think "they" told me 4 weeks was the norm, in my case i did 6 weeks of 50mg - didnt work, 2 weeks after upping it to 75 it started to work. Now, 50 is almost too much, but 25 may not be enough. so im experimenting a bit.

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12 years 8 months ago #33298 by Slammed
Replied by Slammed on topic Promacta Question
I've been on Promacta for 5 days now. So far, I have major fatigue, nausea, and water retention. I can deal with everything, except for the nausea. I hope it gets better. I will have my CBC on Tuesday...that should be interesting especially since tomorrow is my last day of steriods.

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  • dru
  • Offline
  • I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
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12 years 8 months ago #33300 by dru
Replied by dru on topic Promacta Question
Depending on how long you have been on steroids some of the side effects could be from predniisone withdrawal. I always get major fatigue when tapering off prednisone.

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12 years 8 months ago #33305 by Vdeutsch85
Replied by Vdeutsch85 on topic Promacta Question
Slammed,

Getting off steroids for me was awful. I was so tired for weeks. Could barely stay awake .in the car. The water retention has stopped after two months. My face looks much less bloats. I've lost 3 pounds so far
. I'm not Promacta but I'm on Nplate. It makes me hyper and shaky, maybe a little less hungry and ard hard to sleep the night of injection

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12 years 8 months ago #33309 by Bunnie
Replied by Bunnie on topic Promacta Question
I've been on Promatca about 9 months. Other than mild heartburn the first week, no side effects. I saw results in about 10 days and after 4-6 weeks I went over 200 and we dropped the dose from 50 mg to 25 mg.
"I am an old man and have known a great many troubles, but most of them have never happened.\" — Mark Twain\\\\\\"Worry is a misuse of the imagination.\" — Dan Zadra

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  • weirdjack
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12 years 8 months ago #33311 by weirdjack
Replied by weirdjack on topic Promacta Question
Slammed, I took Promacta for 3 years. The best thing I found to minimize the side effects was to take the dose around 1:00am, then go back to bed.
.

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12 years 8 months ago #33315 by Slammed
Replied by Slammed on topic Promacta Question
I take Promacta right before bed. From the moment I wake up and get out of bed, I feel nauseous throughout the whole day. The pharmacist just called this morning for a following up. I told her about my nausea, she is going to call my dr and see if I can get some anti-nausea meds.

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12 years 8 months ago #33333 by Vdeutsch85
Replied by Vdeutsch85 on topic Promacta Question
I'm sorry that you are having that reaction. That is the worst feeling. I hope you feel better and that it helps your counts!

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12 years 7 months ago #33446 by Slammed
Replied by Slammed on topic Promacta Question
After 10 days of taking Promacta, my platelets went up from 40k to 268K! This is without any prednisone! I have NEVER been over 120k before! So, this is such exciting news. Because of the nausea and fatigue, my dr is lowering my Promacta from 50mg to 12.5mg. I hope to be around 50k with 12.5mg...

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12 years 7 months ago #33463 by Vdeutsch85
Replied by Vdeutsch85 on topic Promacta Question
Yay! That is great news!

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Platelet Disorder Support Association

Platelet Disorder Support Association
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.