Platelet Disorder Support Association

Join Us:

Membership Matters

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

rituxan counts

More
12 years 9 months ago #32123 by terralynn06
rituxan counts was created by terralynn06
Okay so finished my last does of rituxan a little over a week ago. Had reactions at every infusion no surprise my body always does even with ivig and really bad with WinRo. However these are my counts


Before first round-32
Second round-35
Third round-39
Fourth round-35
A week later-40

My counts aren't really doing anything I mean they re staying in the same range has anyone else experienced this

Please Log in or Create an account to join the conversation.

More
12 years 9 months ago #32124 by Vdeutsch85
Replied by Vdeutsch85 on topic rituxan counts
I was at 9 a week after finishing Rituxin. However, from what my doctor said it could take up to 12 weeks to kick in, so there is a chance of it still to work. I did not do well with the infusions either. I was very glad when it was over!

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
12 years 9 months ago #32128 by Sandi
Replied by Sandi on topic rituxan counts
It could take time. Rituxan isn't always very fast. One good thing, your counts are in a good, safe range.

Please Log in or Create an account to join the conversation.

More
12 years 9 months ago #32130 by terralynn06
Replied by terralynn06 on topic rituxan counts
Most definitely I'm very optimistic my counts are in a good range however at about 30 I start to experience bleeding in my gums And urine I'm satisfied even if they stay where they are! From what I've been reading on here is peoples counts would go up and down I was just worried because mine have stayed about the same.

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
12 years 9 months ago #32131 by Sandi
Replied by Sandi on topic rituxan counts
Mine were under 10k until the day of the 4th infusion. At that point, they were 150k. They shot up in a week. It takes longer than 4 weeks for most people, so don't give up yet. Once my counts were up, they stayed up for 13 months. Of course they fluctuated up and down, but were above normal most of that time.
The following user(s) said Thank You: terralynn06

Please Log in or Create an account to join the conversation.

You’re not alone. We have answers! Contact PDSA to connect with life altering information, resources and referrals. 440.746.9003 (877.528.3538 toll-free) or PDSA@PDSA.org.

Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.

© Copyright 1997 - 2026, Platelet Disorder Support Association. All rights reserved.

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.