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N-Plate

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13 years 2 weeks ago - 13 years 2 weeks ago #30211 by Luminous
N-Plate was created by Luminous
After failure of IVIGs, steroids and Rituximab I will be starting nPlate injections. The most common side effect is headache... Is this preventable by being well hydrated, standing on your head during injection, etc? What has worked for you? I've sailed through everything else symptom free and would like to do so with this drug. :ohmy:

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13 years 2 weeks ago #30230 by jef
Replied by jef on topic N-Plate
I've had the shots for a year and never had a headache. Good luck...Jean
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13 years 2 weeks ago #30233 by margec
Replied by margec on topic N-Plate
I have had Nplate injections since August and just had a few mild headaches for about 2 weeks and after that nothing. Good Luck!
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13 years 2 weeks ago #30236 by Christine
Replied by Christine on topic N-Plate
I have been on N Plate since Oct 2011 and never had a reaction only a little sleeplesness. Although the doc monitored it closely for the first 3-4 months. It seems it has been the only thing that has helped keep my plts up at a safe level
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13 years 2 weeks ago #30237 by bealiles
Replied by bealiles on topic N-Plate
I was diagnosed with ITP in 2-2006. I have had my spleen out, IVIG, and Rituxin, but nothing has worked. I will be starting Nplate next wk....any thoughts or suggestions. I have read about it but I 'm always nervous starting a new medication
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13 years 1 week ago #30254 by Vdeutsch85
Replied by Vdeutsch85 on topic N-Plate
I hope this helps. I tried IVG and steroids unsuccessfully . I have had two Nplate shots now. One was a low dose because the doctor wants me on lowest dose possible. However last week, my count was at 24,000 so he doubled my injection to see if it would go up. I go back on Wednesday. I have had no side effects at all.

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12 years 9 months ago #32170 by Vdeutsch85
Replied by Vdeutsch85 on topic N-Plate
I'm on a much higher doseage that before and feel a little achy in my back and legs

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12 years 9 months ago #32188 by chasty
Replied by chasty on topic N-Plate
The only downfall for me with Nplate is having to have it each week. My only symptoms appear when Nplate is working harder with my body to produce platelets (when my count is lower), then my muscles spasm and I'm really tired.

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12 years 9 months ago #32193 by Vdeutsch85
Replied by Vdeutsch85 on topic N-Plate
I'm glad I'm not alone in the achiness.....unfortunately I now have petichae on my legs so am not sure if counts are lower than rues :S

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Platelet Disorder Support Association

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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.