!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Me and Rituxan

More
13 years 1 month ago - 13 years 1 month ago #29855 by Wwfbader
Me and Rituxan was created by Wwfbader
I started four weeks ago my rituxan treatment. First week I only did half because I got hives and an allergic reaction so they are making me do an extra week. My count was 62 after the half first round, the second round went really well and I didn't get any side effects but after it my count became a 17. Third went well to but my platelets were a 7 afterwards. I just finished my fourth and I don't know what to do. It's the holidays and my doctor is not in the hospital and my count is a 7. Should I consider this treatment a non responsive one for
Me? I'm really bummed out because I really hoped it would work and put me in remission

Please Log in or Create an account to join the conversation.

More
13 years 1 month ago #29856 by eklein
Replied by eklein on topic Me and Rituxan
It can take 12 weeks to see if you have a Rituxan response so you really can't tell yet.
Erica

And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
The following user(s) said Thank You: Wwfbader, kym

Please Log in or Create an account to join the conversation.

More
13 years 1 month ago #29857 by jaysbeaker@verizon.net
Replied by jaysbeaker@verizon.net on topic Me and Rituxan
I agree with Erica, it takes time. My wife did a her final Rituxan treatment 4 weeks ago and her counts have bounced up and down until this week where it was 150......so don't give up hope yet. Your body's immune system is going through some pretty drastic changes, give it some time.

Good Luck

Jay
The following user(s) said Thank You: Wwfbader, kym, 2Jacks

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
13 years 1 month ago #29859 by Sandi
Replied by Sandi on topic Me and Rituxan
As the other said, it's too soon. Most do not get a response until 4 to 12 weeks after the first infusion. You still have time.

My counts did the same thing, went from 8 to 11 to 3, then all of a sudden went to 150 at the next count. I got 13 months treatment-free after that.
The following user(s) said Thank You: Wwfbader, kym, 2Jacks

Please Log in or Create an account to join the conversation.

More
13 years 1 month ago #29909 by Wwfbader
Replied by Wwfbader on topic Me and Rituxan
Thanks everyone.

Recently I've been getting really weird chest pains and I don't know how they came about. Is this a side effect of rituxan, in really worried. My doctor is horrible, extremely not caring and I can't even communicate with him

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
13 years 1 month ago #29911 by Sandi
Replied by Sandi on topic Me and Rituxan
I'd talk to your GP about that. Hemo's don't seem to want to discuss non-ITP related matters.

Please Log in or Create an account to join the conversation.

  • dru
  • Offline
  • I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
More
13 years 1 month ago #29917 by dru
Replied by dru on topic Me and Rituxan
I did get chest pains during and after Rituxan treatment and my hem doc sent me to a cardiologist to have it checked out. It turned out to be reflux and got better with anti-acids. Sounds like you should talk to your GP like Sandi said.

Please Log in or Create an account to join the conversation.

You’re not alone. We have answers! Contact PDSA to connect with life altering information, resources and referrals. 440.746.9003 (877.528.3538 toll-free) or PDSA@PDSA.org.

Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.