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I feel like I'm the only person with Cyclic ITP

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13 years 2 months ago #29347 by kaylas
I feel like I'm the only person with Cyclic ITP was created by kaylas
I've had ITP for 14 years now with my platelets dropping as low as 1. it wasn't until 4 years ago that my hematologist told me that I now have Cyclic ITP. It's when my platelet levels drop down very fast whenever they want then rise again within a couple days. Every month almost like clockwork now they drop down to 4 it's so weird that its always usually 4. My gums start bleeding, I get blood blisters on the insides of my cheeks and on my tongue, patechia, and bruising. Every hospital I go to it seems like they want to learn off of me more than treat me. Always 10 doctors asking me the same questions over and over and over again. its so annoying!!! :angry: and frustrating !!! can I please talk to someone else with this disorder please ? anyone? :(

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13 years 2 months ago #29390 by russ
Replied by russ on topic I feel like I'm the only person with Cyclic ITP
Very interesting. So, do your platelet counts go back up without treatment and if so what do they go to and how long do they stay there? Notice any connection with diet or other things going on in your life? Never heard of Cyclic ITP myself but then I'm new to this whole thing.

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13 years 1 month ago #29772 by charlottem005
Replied by charlottem005 on topic I feel like I'm the only person with Cyclic ITP
Not sure that I have ever heard of this type of ITP either, but my platelets do drop monthly as well unless im on my Prednisone treatment at the time of course. Do you have a treatment? My platelets last month fell to 6k which seems to be my low number continuously as well.

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Platelet Disorder Support Association

Platelet Disorder Support Association
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.