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ITP back strong after 11 months...Time for N-Plate

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13 years 3 months ago #28464 by nrcoach
ITP back strong after 11 months...Time for N-Plate was created by nrcoach
A major flare - up after only 11 months of success from rituxin. Platelets crashed to 1000 and haven't budged upward for the past 4 days. Introductory dose of N-Plate administered 2 days ago. Drs suggesting a double dose next week. Severe petechiae on back of hands as well as ankles and legs. Mouth sores and nose bleeds. I'm pretty upset and frustrated now. Have to wait 2 more days to see Dr on Monday. 40 mg decadron is all I'm taking now. Help!

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13 years 3 months ago - 13 years 3 months ago #28466 by Ann
Replied by Ann on topic ITP back strong after 11 months...Time for N-Plate
If you take decadron with the Nplate you won't know if the Nplate is working. It's really best not to do anything else with the Nplate and wait and see if you get a response first. Also it takes 4 or 5 days for an Nplate injection to start to take effect so if after 4 days it has done nothing then it could well be too early to tell.

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13 years 3 months ago #28471 by eklein
Replied by eklein on topic ITP back strong after 11 months...Time for N-Plate
Why don't you try Rituxan again? Several of us have gotten much longer remissions the second time. My first time was 9 months, now I'm going on 3.5 years of remission.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

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13 years 3 months ago #28492 by nrcoach
Replied by nrcoach on topic ITP back strong after 11 months...Time for N-Plate
I thought the decadron was supposed to suppress my immune system while the nplate would increase my platelet production. After 4 days nothing has changed. Platelet count still @ 1000, bloody runny nose, bruising etc. Going back tomorrow for second (stronger this time)dose of N-Plate.

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Platelet Disorder Support Association

Platelet Disorder Support Association
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.