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Rituxan and HIGH numbers

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13 years 4 months ago #28168 by tgurin12
Rituxan and HIGH numbers was created by tgurin12
So here is how things are going
Week 1-First Shot-Beginning Number-3K
Week 2-2nd Shot-43K
Week 3-3rd shot-220K
Week 4-4th Shot-443K
Week 5-493K

I have no idea what the heck is going on, all I kept hearing is this would be a roller coaster, but it looks more like a tower to me!

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13 years 4 months ago #28169 by eklein
Replied by eklein on topic Rituxan and HIGH numbers
Well great! - that seems unusual, I don't remember others reporting above normal counts from Rituxan. Did you get any other treatments at the same time, as temporary boosters like pred or IVIG?
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 4 months ago #28171 by Sandi
Replied by Sandi on topic Rituxan and HIGH numbers
I'd say "STOP"! Why did you get 5 treatments? Too many, especially with such a great response.

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13 years 4 months ago #28178 by tgurin12
Replied by tgurin12 on topic Rituxan and HIGH numbers
I just listed week 5 as my numbers, I only got the usual 4 treatments.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 4 months ago #28196 by Sandi
Replied by Sandi on topic Rituxan and HIGH numbers
Oh, okay. That's good! Hopefully, your counts will stabilize in the next few weeks.

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13 years 4 months ago #28199 by tgurin12
Replied by tgurin12 on topic Rituxan and HIGH numbers
Well, they are down to 290 today so I had 200K drop. Everyone is freaking that dropped so much so fast.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 4 months ago #28200 by Sandi
Replied by Sandi on topic Rituxan and HIGH numbers
Really? 290 is so much better! Hopefully, you will maintain that.

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Platelet Disorder Support Association

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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.