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Winrho black box warning new?

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13 years 4 months ago #28069 by KittieG
Winrho black box warning new? was created by KittieG
Hey guys!

My hematologist told me the clinic didnt want to order Winrho for me because there was a new black box warning.

Anyone heard about a "new" black box warning? I know there was one one there before (can't remember what it said) but is there a new one?

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13 years 4 months ago #28070 by Ann
Replied by Ann on topic Winrho black box warning new?
It doesn't look new to me. The information is here..

www.winrho.com/
The following user(s) said Thank You: KittieG

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13 years 4 months ago #28121 by KittieG
Replied by KittieG on topic Winrho black box warning new?
That's what I thought - the one about kidney failure. Nothing new. I did two rounds of it last summer and it was very easy for me to take.

I wonder why my hematologist office doesn't want to order it? Weird.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 4 months ago #28133 by Sandi
Replied by Sandi on topic Winrho black box warning new?
Some hemo's are backing away from it because of the black box warning. It's possible that they just found out about it...I don't know. It seems to me that new info comes out all the time but some docs don't find out for a few years.

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Platelet Disorder Support Association

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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.