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Yeah, WinRho!

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13 years 7 months ago #25744 by debrasla
Yeah, WinRho! was created by debrasla
My 22 year old son's platelets were down to 8000 this past week and they did the WinRho tx in the hospital for about 7 hours and this week, his platelets were 182!!!! That is the highest they have ever been since being diagnosed last fall. For the first time, he doesnt have to see the doctor for 3 weeks! We are on cloud nine!

I hope this is it and they stay this high, his normals have been 12-19 these past couple of months and then the past couple weeks were below 10, so they did the Winrho and it seems to be working.

Very excited!

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 7 months ago #25745 by Sandi
Replied by Sandi on topic Re: Yeah, WinRho!
Deb that is fantastic! People who respond to Win-Rho have had a few weeks to a few months of decent counts. I hope his lasts quite a while!

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