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New warnings re WinRho

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15 years 6 months ago #2237 by Ann
New warnings re WinRho was created by Ann
Hi guys, just wondered if you'd all heard the new warnings and recommendations on treating with WinRho. A nice easy treatment made less easy it seems..

"Patients should be closely monitored in a health care setting for at least eight hours after administration, including taking multiple urine samples (also called urinalysis) during the monitoring period."

www.iguard.org/alerts/alert/830.html
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15 years 6 months ago #2255 by BethF
Replied by BethF on topic Re:New warnings re WinRho
Hi, Ann -
Thanks for the information, although it made me feel ill. Brady is scheduled to receive WinRho (well, actually RhoGam, but I'm thinking the same warning may apply) on Monday. It's important to read about and know all of these possible complications, but it's disheartening to not have something that is 100% guaranteed SAFE for Brady to use so that he can do normal, 13-year-old boy activities whenever he wants.

I'm going to email his doctor now to see what she says, then I think I'll let myself be mad for a bit, then bounce back in time for Brady to return from school!

Thanks again,
Beth - mom to Brady (age 13, diagnosed 1/18/02)
Beth - mom to Brady (age 19, diagnosed 1/18/02) and Matthew (age 21)
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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15 years 6 months ago #2313 by Sandi
Replied by Sandi on topic Re:New warnings re WinRho
Hey Ann! Glad to see you!
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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