Uuurg rituxan

and hi everyone else on this post I'm Keli diagnosed since 03 at age 17 im 26 now tried everything had a stroke on nplate oct. 2011 tried rituxin after allergic reaction four years ago recently first time 3 weeks ago was my first round no reaction haven't been in the hospital since my platelets even hit 96 second go in the office 2 weeks ago reaction broke out in head to toe hives throwing up shortness of breath they gave me per med Benedryl and sou medrol every time they were able to do the same when I had the reaction. But one question after my first infusion five days later my face swelled up like a balloon my lips hives everywhere dr insists it couldn't have been that delayed n it was an antibiotic I was on is it possible? Sorry I'm all over the place but also my third infusion was today haven't been able to finish bags 2 and. 3 my drs office called 911 the hives were so bad n had me escorted to th hospital is this worth it when nothing else works? I've done it all

Had you had hives before? Have you seen an allergist?

In my experience with hives, the medical personnel who administer treatments claim there could be no connection between the treatments and the hives--usually citing time as the reason ("two weeks is too long"). But my allergy doctor has felt that things stay in our bodies lots longer than is usually thought, and that those treatments were probably the culprits.

Kelli Rae,
I've heard that if you have an allergic reaction like that, (especially the throat swelling closed is concerning), that you are at greater and greater risk of having an increasingly more serious reaction with each exposure. Some doctors would say to not risk that and discontinue any further infusions.

Have you ever considered looking into homeopathy? Quite a few have had success with treating their ITP (or their Kid's). There are no side effects or risks, and since it is based on an individual's unique characteristics and symptoms, it is customized for each person. With a correctly chosen remedy, you should see improved health on all levels--it doesn't just have an effect on your platelets, but is truly a wholistic medicine.
You can read more about it in the Natural Treatments section

April

Kelli - I certainly hope they don't try to give you Rituxan again. Getting that last treatment is not imperative. There are studies that show that one treatment may be enough for ITP. It just takes time to work (if it is going to).