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Promacta - benefit from restarting?

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13 years 11 months ago #22114 by gayk4
Promacta - benefit from restarting? was created by gayk4
My daughter has been on Promacta since 6/7/12. Doctor took her off after some ups and downs and recent down to 9,000 with 75 mg and predinsone also. Now she is just on prednisone, and that doesn't seem to be working too well either. Does anyone know if a benefit from restarting Promacta after being off a month? Promacta did give her almost a "normal" life for 5 months.

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13 years 11 months ago #22119 by Ann
Replied by Ann on topic Re: Promacta - benefit from restarting?
If it were me I'd come off the pred and stick to the promacta. These new drugs do take some time to get stable and also can have blips. But I wouldn't do pred given the choice and definitely not long term.

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  • weirdjack
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13 years 11 months ago #22120 by weirdjack
Replied by weirdjack on topic Re: Promacta - benefit from restarting?
What Ann said.
It took me awhile to stabilize when I first started Promacta. You don't say what the up and down numbers are....but remember that the goal with Promacta is to get one to a safe level (around 50k), not a 'normal' level.
However, some people simply do not respond to it. Nplate would be the next option to try.
BTW: "6/7/12" is 4 months away in the future still. :)

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13 years 11 months ago #22215 by jreefer
Replied by jreefer on topic Re: Promacta - benefit from restarting?
I am not taking Promacta because it is so expensive. How do you afford it?

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  • server
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  • newcreationchangingdaily
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13 years 11 months ago #22219 by server
Replied by server on topic Re: Promacta - benefit from restarting?
I get mine through CVS/Caremark Pharmacy. The nurses at your docs office should be able to help you with checking around for places that will help with the cost.
My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen

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13 years 11 months ago #22368 by DeeDee
Replied by DeeDee on topic Re: Promacta - benefit from restarting?
I get help through the Patient Access Agency N. Carolina. But the manufactor might have a program that would help or tell you where to get the help with the high pay cost of the med. Good luck

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Platelet Disorder Support Association

Platelet Disorder Support Association
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.