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Nplate Self Injection

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14 years 2 days ago #21834 by mjocusa
Nplate Self Injection was created by mjocusa
Does anyone have any experience with self administration of Nplate in the US after the latest FDA rule change in December 2011? My father's doctor is saying that Nplate still cannot be self injected under these rules. We know it is allowed in Europe and we're hoping the changes made would allow it here as well. Thanks, Michael

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14 years 2 days ago #21835 by Christine
Replied by Christine on topic Re: Nplate Self Injection
My doc (in Canada) keeps saying I will be taught how to self inject but as yet nothing. It would save a 3 hr trip once a week. I can't foresee any problems.

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13 years 11 months ago #22315 by mjocusa
Replied by mjocusa on topic Re: Nplate Self Injection
We got a definitive answer on this from an ITP specialist at USC medical center. You still cannot self administer Nplate, even with the less strict FDA requirements. Just part of the hoops to jump through. In the clinical trials patients self injected for 5 years, only to have to stop and go into a clinic once the drug received approval.

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8 years 8 months ago #58959 by Lauralu
Replied by Lauralu on topic Re: Nplate Self Injection
Is there an update on this at all? I would like to self-inject, especially since I want to travel for more than one week.

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8 years 8 months ago #58963 by Margaret k
Replied by Margaret k on topic Re: Nplate Self Injection
Here in the UK you can self inject . I don't know about the USA.

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8 years 8 months ago #59124 by rjsmyth
Replied by rjsmyth on topic Re: Nplate Self Injection
Puzzling that they do not let you self inject in the USA. I did it for two and a half years until it suddenly lost its efficacy.

You would have to keep the phials in a fridge whilst travelling - certainly a cool bag. I have done this myself successfully.

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8 years 8 months ago #59265 by Kharys
Replied by Kharys on topic Re: Nplate Self Injection
The dosage of my Nplate changes often depending on whether my platelets went up or down that week. It would be hard to monitor if I was injecting at home though it would be a lot more convenient.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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8 years 8 months ago #59271 by Sandi
Replied by Sandi on topic Re: Nplate Self Injection
Khary's - the dosage shouldn't be changed often based on counts. The goal is to find the lowest possible steady dose that will maintain counts around 50k. If your doctor is adjusting the dose based on your counts, he's just going to chase the counts all over the place and you won't find stability. This could also contribute to the side effects.

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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.