NPLATE had a stroke

I am 26 i have had ITP for 8 years, after everything stopped working steroids, ivig, rituxub, had a splenectomy I started nplate dec 2010, with counts of 124 the friday before left for a cruise and was given my usual dose of nplate firat day on the cruise my left arm went numb and my face was drooping come to find out i had a stroke, my platelets were at 405 by now and still going up i am sharing my story because ive been told my dr should have never tried to keep my counts in a normal range just a safe range and would not wish this on anyone has anyone else had a stroke bc of the way nplate was administered?

Keli:

I'm so sorry to hear this. Have you recovered?

You're right, counts that are too high can cause problems and I sometimes feel frustrated with the reimine that some people are on....multiple meds at the same time, etc. Being asplenic can also raise the clotting/stroke risk, so people need to be careful when mixing too many meds that can cause clotting.

Have you been tested for APS? I can't remember.

Sorry to hear that, Keli! Hope you're doing better now.

I'm so sorry to hear your story. that is just terrible. Keep us posted if you can. Sounds like you deserve financial compensation. Best wishes for a full recovery.

Hi, thank you all. its now been 4 months since my stroke still dont have feeling in my left arm but i can move it ans use it and yes i have been tested for everything and always comes back PURE itp i just hope new treatmenta are on their way we all need a new batch i am back on nplate thats not working at all, and ivig every single week.....o cant keep doing it to my body im tryin a natural route may not work but at least i can say i tried everything any words would be appreciated thanks im sooooo over qll of it this is the first time i am truely discouraged