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Prednisone side effects

  • mhilsabeck
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  • Diagnosed June 2010, Refractory ITP. Prednisone. IVIg, Splenectomy. Rituximab. Current Status: Remission
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14 years 4 months ago #18703 by mhilsabeck
Prednisone side effects was created by mhilsabeck
It's been a year and two months, but I'm finally off Prednisone since Tuesday, Sept 13. I've noticed some changes since getting off the drug, excessive hair loss, breakouts, sensitive gums. I was wondering if anyone else has had side effects of coming off the drug.

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  • dru
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  • I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
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14 years 4 months ago #18709 by dru
Replied by dru on topic Re: Prednisone side effects
I do have side effects from coming off prednisone, not the same ones you mentioned. I have muscle aches, fatigue, headaches. I think it is pretty common to have some issues especially since you have been on for so long. Your body has to adjust.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 4 months ago #18711 by Sandi
Replied by Sandi on topic Re: Prednisone side effects
Yes, those are common withdrawal side effects.

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14 years 4 months ago #18766 by Bev
Replied by Bev on topic Re: Prednisone side effects
Can I ask a question for those that have been on pred for awhile. I have been on a month, 2 times high doses and now I am being tapered off and down to 10 mgs a day. I have gained 10 pounds and my stomach looks like I am pregnant. Has this happened to anyone else. I dont think it helps my stomach that I am on a huge dose on antibiotics for H-pylori... Let me know if this is normal, thanks

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 4 months ago #18768 by Sandi
Replied by Sandi on topic Re: Prednisone side effects
Yes, it's normal. Prednisone redistributes body fat and causes water retention. Some of it comes off when you stop the drug and some of it you may have to work at. How high was your dose? That's unusual for only a month, but everyone is different.

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  • mhilsabeck
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  • Diagnosed June 2010, Refractory ITP. Prednisone. IVIg, Splenectomy. Rituximab. Current Status: Remission
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14 years 4 months ago #18771 by mhilsabeck
Replied by mhilsabeck on topic Re: Prednisone side effects
Sometimes if your counts drop as you're getting tapered, have your doctor slow your taper. Happened to me and I had to go to the hospital. Also beware of stretch marks.If you know you might be on Pred for awhile or have questions about the side effects there's a book called coping with prednisone and it's a really great book letting you know what to expect.

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