Platelet Disorder Support Association

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Danazol treatment -

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14 years 2 months ago - 14 years 2 months ago #17158 by Lady Elly
Danazol treatment - was created by Lady Elly
I am an adult diagonised with I.T.P. in May, 2010. I took a shingles vaccine in April, 2010, which caused the I.T.P. I was put on 65mg of Predisone, and dropped dosage over 4.5 months. It didn't work. I took 4 treatments of Retuxin which didn't help. I've had 11 treatments of IVIG'S. They help for a month to 6 weeks and drop below 10. This past week, I started on Danazol (Danocrine). I've had reservations about taking it. However, I am getting desperate since my platelets do not hold for very long. Has anyone taken Danazol and did it work to help the platelets hold?
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14 years 2 months ago #17180 by Ann
Replied by Ann on topic Re: Danazol treatment -
Not a particularly popular drug here because it rarely seems to work and it causes unpleasant side effects particularly for women as it is a modified testosterone.

There are other drugs to try too.. azathioprine and mycophenolate are two immunosuppressants and then there are the new TPO drugs which tend to be used as a last resort. So don't give up just yet.
The following user(s) said Thank You: Lady Elly
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14 years 3 weeks ago #18348 by halork
Replied by halork on topic Re: Danazol treatment -
Danazol DID work for me after Prednisone did not. I have been in remission now for 7+ years (knock on wood). I'm male, so I didn't have the side effects many women experience. Good luck!
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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