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Nightmare

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14 years 6 months ago #16961 by goinggo
Nightmare was created by goinggo
I heard the days you get off Dex can be worse than the days you on it ... And it is true for me. It has been 5 days since my last dose of Dex pulse of 40 mg a day for 4 days. I am still suffering from the side effects... I feel weak and shaky at all times ... My insomnia turned into nightmares ... Endless nightmares all night long ... As soon as I fall asleep, I have nightmare, some so intense that I find myself soaked in sweat when I wake up.
My question is, is this normal reaction? Has someone else had similar experience with Dex treatment? How long will the side effects disappear? I should add that I am also under RItuxan treatment and have just had the second infusion two days ago. But since I had RItuxan before I don,t think the side effects are from Rotuxan.
Thanks in advance for your input.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 6 months ago #16963 by Sandi
Replied by Sandi on topic Re: Nightmare
I've never taken Dex, so I don't know if nightmares are common from that. I do take other meds that cause nightmares and I have them constantly too. I noticed that stress is also a factor in nightmares so maybe once your counts are up the nightmares will stop.

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14 years 6 months ago #16971 by juliannesmom
Replied by juliannesmom on topic Re: Nightmare
I don't have ITP. (I'm mom to an ITP teen.) I took decadron for a particularly nasty poison ivy bout. (Eyes swelling shut, etc.) The first couple days were great, as I had expected after a previous brief steroid taper. As I tapered off the dex, and for the first few days with no dex, I had frequent sweats and hot flashes, and terrible bone pains. I don't recall nightmares, but I slept so fitfully I spent the night in a recliner chair to spare my husband a sleepless night. It should pass soon. Sleep in all cotton in the meanwhile. If the dex works for you, perhaps it will be worth a few days of misery to get a pretty good month. Lots of folks have said so. My daughter couldn't tolerate the platelet plummet after the dex wore off. She dropped rapidly to a count she previously tolerated well, but with the rapid drop, she had a nonstop nosebleed that landed her in the hospital. I hope you will be one of the ones who do well with the dex.
Norma

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14 years 6 months ago #16989 by goinggo
Replied by goinggo on topic Re: Nightmare
Thank you Sandi and Norma for your reply. I called my hemo and he does not think nightmares are common side effects of Dex. He is surprised that I am still experiencing side effects 5 days after finishing the pulse. He said that by now the drug should be out of my system. But I know it cannot be true because I am still swelling. I also did some research on line and found some other people have the same experiences with Dex ...seems like although not very common, nightmares can be one of many side effects of taking Dex.
I took some benadryl last night and it seemed to help a bit.

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