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Anyone treated with Vivaglobin or Hizentra?

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14 years 6 months ago - 14 years 6 months ago #16877 by ca2al11
Anyone treated with Vivaglobin or Hizentra? was created by ca2al11
I've had IVIG (Gammunex) for several years now, every 6-8 weeks, with no problems and works ok. Now insurance company will only approve Vivaglobin, which is not only a different drug but a different method of treatment. It's not an IV,but under skin injection that you (or home health care) do yourselves at home and only takes an hour compared to 7-8 for IVIG.

Have also heard Vivaglobin has been discontinued in USA as of April 2011, so don't know why that drug was even approved now, unless they think there is still some supplies out there to use. I also read past Viva patients were being referred to Hizentra.

Maybe it's ok but it's change from what I'm used to and comfortable with, so have some concerns. Has anyone used this at all and what are your experiences? Appreciate any help, comments or advice you have. THANKS!

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  • Melinda
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14 years 6 months ago #16879 by Melinda
Replied by Melinda on topic Re: Anyone used Vivaglobin?
www.vivaglobin.com/
It seems they discontinued it in April. When did your insurance company change to this drug? Can't imagine why an insurance company approve a drug that has been discontinued?

Sorry I can't help you - I've used neither it nor IVIg.

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Platelet Disorder Support Association

Platelet Disorder Support Association
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.