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Between a rock & a hard place . .

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14 years 7 months ago #16591 by meredithjane
Between a rock & a hard place . . was created by meredithjane
Visit with Physician on Thursday went OK. I explained I was there under pressure from others. (10 months after emergency treatment with Octagam, counts 25 - 30)
After some discussion & to-ing & fro-ing, I walked out with a script for 2.5 mg prednisolone. . . Still haven't filled it yet, have very mixed feelings about it, but don't know what else to do. EVERYTHING has side effects & consequences, this whole thing is a b..... nuisance! :S
Feel like giving everyone else a pill & saying 'happy now? Leave me alone!'
mj

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14 years 7 months ago #16593 by milly
Replied by milly on topic Re: Between a rock & a hard place . .
Hi MJ,
always hard to know what to do and it is a real pain in the ###, maybe the 2.5 of prednisolone would help without too many side effects.

Medicating everyone else, now there is a thought!!

Good to hear all your crops are doing well.
There is no practice run in life.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 7 months ago #16603 by Sandi
Replied by Sandi on topic Re: Between a rock & a hard place . .
What total dose are you supposed to take? 2.5 is very, very low.

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14 years 7 months ago #16621 by meredithjane
Replied by meredithjane on topic Re: Between a rock & a hard place . .
Hi Sandi,
I know, 2.5 mg/day is low - I guess it is a compromise of sorts . . Just want to try to keep counts above 30.
mj

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14 years 7 months ago #16623 by cgoewert
Replied by cgoewert on topic Re: Between a rock & a hard place . .
Hi Sandy,

One of the common themes with ITP is that everyone's response to any and every medication can totally different. For some, prednisone is effective. Others have no response. And others have a negative response. A low dose might be perfect for your ITP.

All you can do is try it and watch your response.

At 2.5 mg, the side affects will probably be less.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 6 months ago #16626 by Sandi
Replied by Sandi on topic Re: Between a rock & a hard place . .
AT 2.5, there shouldn't be any side effects I would think. That dose is lower than the amount of cortisol the body makes naturally. I hope it works for you!

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14 years 6 months ago #16645 by Dean
Replied by Dean on topic Re: Between a rock & a hard place . .
Understand your feelings about Meds. I have been on a depression med for several years and recently stopped taking with approval from Dr, as a few of the side affects seem to be getting worse. So, will see in a few weeks if side affects improve. Meds may help one issue, but cause others so it definatly gives one mixed feelings. I do not think 2.5mg of Prednisone is going to cause you any trouble. I would fill it see if helps you.
Good Luck.
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14 years 6 months ago #16724 by tlmons
Replied by tlmons on topic Re: Between a rock & a hard place . .
Isn't 25 - 30 pretty good though. It seems to me that the dr is trying to "fix" something that isn't broken. And after 10 months. I don't know and maybe its just me, but I don't see a cause for worry. :)
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14 years 5 months ago #17389 by meredithjane
Replied by meredithjane on topic Re: Between a rock & a hard place . .
Hey ho,
Finally relented & have been on 2.5 mg Pred for 3 weeks.
In the meantime we have moved house & had family, including 3 young grandies stay for a week.
Count on Thursday was 28, was advised to up the dose to 5 mg. I feel 'crappy' - though I suspect it has more to do with our ridiculous schedule lately, plus the fact of readjusting physically & mentally to the move off farm.
mj

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 5 months ago #17400 by Sandi
Replied by Sandi on topic Re: Between a rock & a hard place . .
You moved off of the farm? Where did you go?

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14 years 5 months ago #17414 by Ann
Replied by Ann on topic Re: Between a rock & a hard place . .
Sounds like a sneaky doctor to me. Persuade you to do take a low dose and then higher it as you get used to the idea. I wouldn't treat at over 20 and would resist everyone else's nagging because they don't have a clue.

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14 years 5 months ago #17501 by meredithjane
Replied by meredithjane on topic Re: Between a rock & a hard place . .
Obviously I don't tolerate Pred. well (who does??) & am now back down to 2.5mg for 10 days, then every 2nd day then OFF. Hopefully husband's head & my hair will stay on now :silly:
mj

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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.