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Nplate: how long before you saw results??

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14 years 7 months ago #16512 by eappel
Good morning,

My husband has had two weeks worth of Nplate at the minimum dosage. There has been no improvement so last week the doc gave him his third shot at a slightly higher dosage. Judging from his symptoms this morning - we are thinking his count has dropped below 5k again this week.

How long before you starting seeing results with Nplate? How high of a dosage did you have to go?

We've already gone through failed prednisone and failed rituxin treatments so we're wondering how long we should try to be optimistic before we give up on this.

Also...if Nplate failed, did Promacta work for anyone? I know they are similar so I'm wondering if one could work if the other did not.


Thanks!

Erin

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14 years 7 months ago #16514 by Ann
I got up to the 5th dose level before getting stable although my count did go up and down as I was getting there. Others I see at the hospital, one got up to the 9th dose level and the other the 8th level. The idea is not to give up until you've got to the 10th level. Some don't give it long enough which is a shame as it is said to work for something like 88% of people.

PS. I think this thread is posted in the wrong place. Sandi will probably move it in time.

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14 years 7 months ago #16515 by eappel
Replied by eappel on topic Nplate: how long before you saw results??
Thank you so much for the information. Unfortunately our doctor doesn't seem too knowledgeable about how long it can take to react so hearing we are just at the start of trying to make this works gives me hope!

And yes...I realized I posted in the wrong place! I couldn't figure out how to delete this but did re-post in the correct forum.

Thanks again for your help!!

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