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Stuck on Prednisone

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14 years 3 months ago #16053 by rhonda
Stuck on Prednisone was created by rhonda
Hello,
I recently have moved, and in this small community there are no doctors qualified to care for my diseases. This is a hard adjustment, but I love my new surroundings minus the bear population. I asked the doctor here if there are any other medications that I could take besides prednisone, and I was told no. I have been taking prednisone for over a year now, and my platelets still drop if I use less then 15 mg. The doctors are trying to locate a hematologist to see me, but they only have teleprompter physicians if you need a specialist. So I am waiting for them to locate doctors that will take me as a patient. I feel so alone. This is a really hard adjustment after having access to any specialist that I ever needed.
Rhonda
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 3 months ago #16056 by Sandi
Replied by Sandi on topic Re: Stuck on Prednisone
My goodness you are stuck in the dark ages! I hope you find a doctor soon - you might have to travel. How far is the nearest city?
14 years 3 months ago #16057 by
Replied by on topic Re: Stuck on Prednisone
www.pdsa.org/treatments/conventional.html
www.pdsa.org/treatments/complementary.html

Maybe an MD doesn't know of any other way to treat ITP except with prednisone or a splenectomy - why not help him and give him the above so he can read up on treatments.

How do you taper prednisone - slowly?

Hopefully a hematologist will be located soon. Have you done a search for one?

Good luck!