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Rituxin induced taste changes??

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14 years 3 months ago #15866 by tdecker
Rituxin induced taste changes?? was created by tdecker
It is one week after my 4th rituxin infusion. That was my last one scheduled. My platelets were holding before the last infusion at 118 and they lowered my prednisone from 40 mg to 20 mg (from a high of 70 mg). I see the Hematologist on Thursday. Why all of the sudden today, does everything I eat have a plastic like/chemical like taste? I thought it was just the processed pretzels I was eating at lunch, but it is in my mouth - the lettuce, tomatoes, feta, chicken, quinoa - odoul's nonalcoholic beer. Does anyone have any thoughts about this or experiences with something like this?
Traci
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 3 months ago #15870 by Sandi
Replied by Sandi on topic Re: Rituxin induced taste changes??
Prednisone cause loss of taste for me, big time. I used to eat hot salsa every night just so I could taste something. It eventually went away when I got off of it.
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14 years 3 months ago #15877 by eklein
Replied by eklein on topic Re: Rituxin induced taste changes??
Interesting! I never heard that about pred. I wonder if that is part of the reason why we eat more, trying to get that taste sensation.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
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14 years 3 months ago #15878 by SteveC
Replied by SteveC on topic Re: Rituxin induced taste changes??
I had a taste reaction and it cleared after a few weeks. I thought it was just my mind, what I have of a mind! :)
Blessings of enough...
Faith to trust our Lord
Joy to share with others
Strength to help the weak
Love to share with the hurting

Steve C
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14 years 3 months ago #15883 by Dean
Replied by Dean on topic Re: Rituxin induced taste changes??
Prednisone caused me to loose my taste. Once I was completely off it taste senses returned.
So my guess it is from the Prednisone. Once you have been off Prednisone your taste will return.
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14 years 3 months ago #15910 by debbied
Replied by debbied on topic Re: Rituxin induced taste changes??
I got that reaction after eating pine nuts from China once. I looked it up and a lot of people had the reaction. Weird.
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14 years 3 months ago #15911 by eklein
Replied by eklein on topic Re: Rituxin induced taste changes??
The things I learn here!
abcnews.go.com/Health/Wellness/pine-mouth-pine-nuts-leave-bitter-taste-lingers/story?id=11097222

Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
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14 years 3 months ago #15915 by Ann
Replied by Ann on topic Re: Rituxin induced taste changes??
It's listed in various places as a possible side effect of rituxan.

I lost taste with the pred too. The only think I could enjoy was melon so I ate that every day and lost a stone in weight!
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14 years 3 months ago #15917 by CindyL
Replied by CindyL on topic Re: Rituxin induced taste changes??
Neither the pred nor the Rituxan changed my taste buds, but the antibiotics I'm on definitely have! ;)
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