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Blood clot after IVIg

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14 years 7 months ago #15847 by h.young10
Blood clot after IVIg was created by h.young10
Have you ever heard of people with ITP developing blood clots after IVIg treatments? They work great for me in emergencies, but a day after the treatments stopped I was diagnosed with a DVT in my left arm (not the arm the IV was in). Two months later, I am still taking 10 mg/day of Coumadin AND Lovenox shots twice a day...and my platelets are diving once again. Low platelets and blood thinners sound pretty dangerous to me!

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  • karenr
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  • Diagnosed in 2000, at 59, after being on moderately high doses of NSAIDs for arthritis. Splenectomy and rituxan both failed (2004). Did well on prednisone till summer 2018--then terrible reactions. Promacta since 11-19.
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14 years 7 months ago #15849 by karenr
Replied by karenr on topic Re: Blood clot after IVIg
Although I've not heard specifically of an ITP patient getting a blood clot after IVIg, I understand that ITP patients have the same risk of getting blood clots as people who do not have ITP--which never seemed fair to me!

I'm wondering about your doctor prescribing both Coumadin and Lovenox. After my knee replacement, 9 years ago, my orthopedist prescribed Lovenox (3 shots a day) because, I understood, that Lovenox would be safer for me than Coumadin. Does anyone know if one is safer for ITP patients?

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 7 months ago #15872 by Sandi
Replied by Sandi on topic Re: Blood clot after IVIg
Actually, people with ITP are at greater risk of blood clots than people without ITP. There are several reasons. It can be hard to juggle low counts and blood thinners. There have been several people here who have to do it. I take aspirin, but my counts have been good.

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14 years 7 months ago #16019 by moose1
Replied by moose1 on topic Re: Blood clot after IVIg
I'm new to this site but not to ITP which was diagnosed in Nov '05. Undetectable counts, every drug tried and no change in counts, splenetomy and then the blood clots started with in 2 weeks post surgery. First one behind left knee, later in lungs, the both knees. Now I have DVT, PE and lmyphedema to add to my resume and yes I'm on Warfarin for life along with pills for high blood pressure. Last counts were 236 in '07.

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Platelet Disorder Support Association

Platelet Disorder Support Association
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.