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rituxan crash

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14 years 7 months ago #15782 by jmort1
rituxan crash was created by jmort1
Ive been off rituxan and have had 100K+ counts for around six and a half months and i noticed some big bruises this morning

so one does this mean rituxan has stopped working

and two since it only lasted a half of year does that mean it wont work in the future

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14 years 7 months ago #15784 by eklein
Replied by eklein on topic Re: rituxan crash
It could be your partner kicked you in your sleep, or you bumped into something. Get a count and check it out.

With Rituxan, if you achieve normal counts you are more likely to have a sustained remission of several years.

I've not seen any research on how likely it is that subsequent doses will help based on your response.

My first time with Rituxan lasted 9 months. My second time is over three years so far. My counts are usually a little over 200.

Get it checked out!
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 7 months ago #15791 by Sandi
Replied by Sandi on topic Re: rituxan crash
Rituxan lasts a year on average. Some get less, some get more. I had 13 months my first time. I have six years this time. Chances are, if it worked once, it can work again.

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14 years 7 months ago #15809 by Rhiannon
Replied by Rhiannon on topic Re: rituxan crash
I am not meaning to be pessimisitc here but if it works once it more likely to work again.... does that mean, if it hadn't worked well once then chances are next time it not work well again.....? though that depends on what one means by worked well. My counts went up to nice high but within 6 month back right down again.... :ohmy:

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14 years 7 months ago #15824 by Dean
Replied by Dean on topic Re: rituxan crash
My first treatment lasted 11/2 yrs, counts were around 170k's when it finally kicked in. Second treatment will be 2yrs in Oct. Next option will probably be Promacta. I was in the 350k's a few months ago now in the 160k's about a month ago. So, not sure if it is wearing off or if I am leveling off.

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  • server
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  • newcreationchangingdaily
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14 years 7 months ago #15841 by server
Replied by server on topic Re: rituxan crash
My first Rituxan treatment lasted 7+ months. The second one didn't work at all. Promacta is doing what it's supposed to do now!
My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen

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14 years 7 months ago #15855 by specialk16
Replied by specialk16 on topic Re: rituxan crash
My 1st round of Rituxan lasted for about 2 years.... 2nd round my body rejected it, so it didn't take at all for me.

But I agree with Erica, I would get myself checked out. And just because it may have stopped working doesn't necessarily mean you won't be able to take in the future.
Kasha
MCTD (Lupus/Raynauds), Sjogrens, ITP
Plaquenil 400 mgs
Prednisone 10 mgs
Imuran 50 mgs
Rituxan 2005 and 2008 (can't take anymore, body rejected it)

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Platelet Disorder Support Association

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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.