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Purinethol and Mercaptopurine

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14 years 8 months ago #15617 by jgoldman
Purinethol and Mercaptopurine was created by jgoldman
looking for stories of kids taking as longer term treatment and side effects, pros, cons.. thanks!

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  • Melinda
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14 years 8 months ago #15622 by Melinda
Replied by Melinda on topic Re: Purinethol and Mercaptopurine
jgoldman you may want to post this in the "General Discussion for Parents" section under the "Parents of Children with ITP" heading. Also you may want to mention how old your child is and what has been going on with him/her.

Purinethol and Mercaptopurine are the same thing, I believe mercaptopurine is also
called 6-MP or MP-6.

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14 years 8 months ago #15637 by jlollman
Replied by jlollman on topic Re: Purinethol and Mercaptopurine
Hi, I have a four year old that has had ITP for over a year and we recently started 6-mp or mercaptopurine. We started with 25mg/50mg alternating days. We raised it to 50mg every day due to counts not holding. He has been on it for almost four months with no real notable side effects. However... There was a recent article from the FDA in regards to 6-mp and there being more cases of lymphoma associated with the drug in conjunction with others and with it alone. I posted it on the site somewhere that will explain better. After speaking with his hematologist, I did not feel it worth the risk even though she felt like the drug was safe. Good luck with your decision! It has kept my sons in the 30's.
Mom to 7yr old Samuel with Chronic ITP. Diagnosed age 3

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Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.