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Danazol

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14 years 4 months ago #15594 by Stangie11
Danazol was created by Stangie11
Has anyone had any success with Danazol? I have had a splenectomy which put me in remission for 8 years. Low doses of prednisone don't work anymore, and rituxan didn't work. Doc says my choices are higher doses of prednisone, N-plate,or promacta. I kind of want to try some natural stuff for a while. What do you think?
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14 years 4 months ago #15638 by kungpaokitty
Replied by kungpaokitty on topic Re: Danazol
Hi! I was on Danazol after numerous tries of prednisone, IVIG, spleenectomy, Rituxan and nothing worked. Danazol has a lot of testosterone and the side effects were much like prednisone but my bones and joints hurt so much worse. I also had issues with my periods while I was taking the Danazol. They had me on that for about 6 months and my counts were around 75ish, but my quality of life with all of the pain and extra bleeding was horrible! From my experience I wouldn't recommend Danazol to my worst enemy, but everyone is different and it may work out better for you. :)
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14 years 4 months ago #15658 by melloyellow
Replied by melloyellow on topic Re: Danazol
Greetings. I started Danazol about 7 months ago. My options are dwindling, I dont think I want Nplate and the prednizone,well that was a nightmare! So far the Danazol seems to be working for me,no side affects that I know of (knock on wood) I have my next round of blood tests coming up in about a week, I'll let ya know how it goes. Good luck!
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14 years 3 months ago #15984 by melloyellow
Replied by melloyellow on topic Re: Danazol
Went for my bloodwork and got results. My count is at a 3yr high! Up to 152,woohooo! The Danazol which I reduced intake seems to be doing ok and getting rid of that faulty hip which was releasing metal particules into my system didnt hurt none either!
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14 years 3 months ago #16322 by halork
Replied by halork on topic Re: Danazol
I went into remission using Danazol in 2003. The only side effect I had was a tendency to retain fluid. My doc said because it is a male hormone, it's not usually given for women, but men may respond to it better.
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14 years 3 months ago #16449 by jef
Replied by jef on topic Re: Danazol
My doc is now suggesting Danazol, and I have been against it because I am a woman and wary of male horemones. I also have am an emotional person, and I am afraid of what Testosterone can do to nerves. He said it would only be a low dose, and would take about 3 mos to take effect.
Jean
Platelet Disorder Support Association

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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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