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My Promacta Update!

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15 years 10 months ago #1467 by dmblank
My Promacta Update! was created by dmblank
Went to the hematologist today.....good news........
I just got my results from blood work done on Monday, March 8th.
(I've been on Promacta for 1 week and 4 days before blood work.)

Platelet Count on 2/25/10 31,000
3/8/10 60,000

I'm very happy after such a short time. All liver functions are normal and I have no side effects. Thank you Lord!



:laugh:

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15 years 9 months ago #2902 by hairball01
Replied by hairball01 on topic Re: My Promacta Update!
DMBLANK
What's been happen'n since 3/8? What dosage did you start/continue? I'm about ready to start Promacta sometime mid May..... after I return from Europe. My Rituxan retreatment may not work and Promacta will be my backup............ Hairball01

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15 years 8 months ago #5002 by dmblank
Replied by dmblank on topic Re: My Promacta Update!
I was doing so well I haven't seen the doctor. I'm on only one pill of 25 mg. a day. I'll find out my newest count on Thursday, May 25th. I'll let you know then. :)

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15 years 8 months ago #5010 by hairball01
Replied by hairball01 on topic Re: My Promacta Update!
I finally started Promacta on 5/21 but did not get a baseline CBC. My next visit is 5/28 but the count may not reflect the actual results of the Promacta..... I've been on 20mg Pred for a couple months and this keeps my count in the 150k range. At 15mg. my count drops to 10-15k. I expect I'll be on a Pred taper-off that may last a few weeks. Keep me posted. THANX

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15 years 7 months ago #5424 by dmblank
Replied by dmblank on topic Re: My Promacta Update!
Newest count- 95,000 5/26/10

I have to have blood work every month now (instead of every two weeks). I'm thrilled that I've gone from 31,000 in March on 25 mg. to 95,000 only 2 months later. I'm happy to be at 95,000. It's been a long time! I feel free! My liver counts and every other count is normal! Wahoo! Thank you Lord! :cheer:

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15 years 4 months ago #8015 by dmblank
Replied by dmblank on topic Re:My Promacta Update!
Newest Counts on Promacta: 25 mg.

7/30/10 75,000
8/30/10 92,000 (This is the 6 month mark)

I think that it's wonderful to have this great a count for the lowest dosage. I'm thrilled and my quality of life is definitely better. :woohoo:

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12 years 3 months ago #37270 by dmblank
Replied by dmblank on topic My Promacta Update!
I am still on 50 mg. of Promacta every day. My count every month has been between 120,000 and 150,000. I actually go for weeks without thinking about ITP. I love it :woohoo:

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12 years 3 months ago #37282 by Vdeutsch85
Replied by Vdeutsch85 on topic My Promacta Update!
Wow that is very encouraging! Thank you for sharing! I just started it 3 weeks ago and am doing well so far! This week will be the first week with no doctors appt since December! If a week goes by without having to think about itp i may cry!

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12 years 3 months ago #37308 by Slammed
Replied by Slammed on topic My Promacta Update!
dmblank,

I hope to achieve what you're have with Promacta. It's been 5 months since I started and my count hasn't stablize yet, currently, I'm getting weekly CBC's and monthly liver enzymes lab. I would love to get montly CBC's labs and be able to forgot ITP for a while. It's good that my liver is ok.

Just curious, why didn't you stay with 25mg and be in the 90's instead of 50mg?

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Platelet Disorder Support Association

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