Platelet Disorder Support Association

Join Us:

Become a Member

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info
!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Any Advice about Cyclosporin?

More
14 years 5 months ago #14266 by Amber
Any Advice about Cyclosporin? was created by Amber
I am 5 weeks out from starting Rituxan and I am showing no response. Platelets are 4K and I am out of options for my ITP and may have to start cyclosporin. Just wondering if anyone has any advice/experience with this drug. Prednisone doesn't help anymore and I hate the side effects anyway. Thank!!
  • Angel85
  • Offline
  • I am 27 years old from Australia and I have T.A.R Syndrome. My email address is not showing on my profile for some reason so it is blossom_242@hotmail.com for anyone who wants to send me an email.
More
14 years 5 months ago #14285 by Angel85
Replied by Angel85 on topic Re: Any Advice about Cyclosporin?
I had some success with cyclosporin at first, but it ended up the same as the pred, worked and then the more i started using it, i then needed to increase the dose to get the same results and the side effects are just as bad if not worse in my opinion then pred. I wouldn't say not to try it, it may help you, but it does have some nasty side effects as well.
14 years 5 months ago - 14 years 5 months ago #14289 by
Replied by on topic Re: Any Advice about Cyclosporin?
Similar story here. I started on Cyclosporine as a way to get off Cellcept (which was a way to get off of Prednisone). It worked 'okay' for a couple of years, then it just stopped working entirely. At that time I switched to Promacta.
Both Cellcept and Cyclosporine did about the same to me. Counts ranging from 20k to sometimes 50k. Generally in the 20k-30k range. I would still have to do Dex pulses now and then when the count dropped below 10k.
Aside from it's own side-effects, Cyclosporine (and Cellcept) suppressed my immune system. I got sick often and missed a lot of work because of that.
Flash-forward; In almost a year and a half on Promacta, I have only missed one day of work do to illness. Nope, I have no desire to go back to Cyclosporine, even if it did work for me now (it does not).
The good thing about Cyclosprine is the generic version is really inexpensive...a $5 co-pay.
.
Platelet Disorder Support Association

Donate

About

Stay Informed

Follow Us

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
8751 Brecksville Road, Suite 150, Cleveland, Ohio 44141
Phone: 1-87-PLATELET | 877-528-3538 (toll free) | or 440-746-9003
E-mail: pdsa@pdsa.org


© Copyright 1997 - 2025, Platelet Disorder Support Association. All rights reserved.
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.


Privacy Policy and Terms of Use