Platelet Disorder Support Association

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Update From Hairball01

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14 years 6 months ago #13102 by hairball01
Update From Hairball01 was created by hairball01
The last time I was on the site was 10/10/10. I still have ITP but this has been complicated with Transverse Myelitis. I've been in a wheelchair since 12/22/10 but I am learning how to walk with rehab help. I take meds for ITP but the TM is dominating the problems. I haven't given up on PDSA but the TM requires a lot of physical commitment with the rehab. Once I can walk on my own (with or without accesories)I expect to get back into the PDSA group. I haven't died, dissapeared or left the country, but my priorities have changed.
Thanks........Hairball
The following user(s) said Thank You: Lorie85
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 6 months ago #13103 by Sandi
Replied by Sandi on topic Re: Update From Hairball01
Hey Hairball! It's nice to hear from you. So sorry to hear about the TM - very scary diagnosis. I hope you recover soon.
  • server
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  • newcreationchangingdaily
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14 years 6 months ago #13104 by server
Replied by server on topic Re: Update From Hairball01
good to hear from you. I've never heard of TM. How did it happen? Looking forward to hearing more from you again.
My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen
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14 years 6 months ago #13347 by hairball01
Replied by hairball01 on topic Re: Update From Hairball01
Transverse Myelitis: Mostly has to do with an infection or irritation in the spinal cord. Mostly uncurabile except waiting for the nerves to eventally reconnect....sometimes they don't. Definitive cause is undefined.... and without a cause there is no definitive cure. Initial onset: I woke up one saturday morning with a horrible headache and found I could not move my legs to get out of bed. Went to the local hospital, Charlotte N.C. Med Center and Duke Univ.Hosp. I am currently in rehab hoping to walk by summer.
14 years 6 months ago #13349 by
Replied by on topic Re: Update From Hairball01
Hairball it is so good to see you - I had wondered about you. Very sorry to hear about the TM, hope all goes well with rehab! Keep us posted when you can.
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
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