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Promacta (eltrombopag) or N-:Plate experiences

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14 years 7 months ago #12814 by BernadetteK
Promacta (eltrombopag) or N-:Plate experiences was created by BernadetteK
I am wondering if anyone has had any experience with Promacta or N-PLate. As with other meds it's nice to hear about personal experiences.

Thanks in advance for your thoughts and experience.

Bernadette
Hi
I was recently diagnosed with ITP and have found the posts related to Promacta informative and interesting. So far we have tried prednisone which worked for about a week. My counts went from 6 to 303 but dropped back to 6 in a week.Dexamethazone had the same effects with 202 to 6 and 202 to 14....
  • server
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  • newcreationchangingdaily
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14 years 7 months ago #12831 by server
Replied by server on topic Re: Promacta (eltrombopag) or N-:Plate experiences
I've had NPlate. It brought my counts up....WAY up! I was on Rituxan at the same time, I didn't like the side effects of NPlate so when the Rituxan started working I quit the NPlate. Wouldn't go back either. I might even go so far to say that I'd loose my spleen before going back on NPlate! Maybe. Going to start Promacta, when it gets here!
My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen
  • Kelirae24
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  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
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14 years 7 months ago #12868 by Kelirae24
Replied by Kelirae24 on topic Re: Promacta (eltrombopag) or N-:Plate experiences
I was on promacta for 3 months and my platelets count did not go over 5k i am now on nplate and my platelets are all over the place BUT happy to report in a month i have not been below 19 and have been up to 211 at one point its all over the place but at least i am able to have a life
14 years 7 months ago - 14 years 7 months ago #12875 by
Replied by on topic Re: Promacta (eltrombopag) or N-:Plate experiences
A bit over a year ago, I switched to Promacta.
I started Promacta treatment with a 4k count and a 50mg/day dosage.
After a couple weeks the count rose only to 14k, dosage was upped to max 75mg/day.
It took a month to get working, but I've been in the 50k range for the past year now. With far fewer side-effects than other treatments I've been on over the years. 50k is fantastic for me. I've never even seen my count over 90...and that was years ago. Keeping counts around 50k is basically what Promacta literature says is the goal.
A few months ago we lowered the dosage to 50mg/day.....still in the 50k range at last check. I'll know more later today after testing.
Promacta may not work for everyone, but it works for me ..... for now anyway.
Even managed to lose some weight on it.
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