Platelet Disorder Support Association

Join Us:

Membership Matters

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

NPLATE

  • Kelirae24
  • Topic Author
  • Offline
  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
More
14 years 11 months ago #12208 by Kelirae24
NPLATE was created by Kelirae24
Can anyone share their side effects with nplate?
The last two times i got my shot for 3-4 days after im extremely tired and feel pressure in my neck ear and head everytime i move and when i do move i get so sick to my stomach i cant do anything anyone have anything like this?

Please Log in or Create an account to join the conversation.

More
14 years 11 months ago - 14 years 11 months ago #12211 by snowgoose
Replied by snowgoose on topic NPLATE
Hi Kelirae,

I am on the Promacta trial and have been for the past four years. Promacta works in a similar way to N-plate.

I have had ongoing nausea throughout this time, which varies in intensity. I take anti-nausea medication to help deal with it. At times I can not do anything due to the intensity of the nausea.

I also experience headaches and tummy trouble as side effects of the drug too.

I have to weigh up the side effects of the drug vs the risk of constant very low counts as one who bleeds.

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
14 years 11 months ago - 14 years 11 months ago #12212 by Sandi
Replied by Sandi on topic Re: NPLATE
Hi Kelirae! Could you do me a favor and post in the "Adults with ITP" sections instead of the "New Forum Information" section? You'll get better responses if you post in the right area.

Please Log in or Create an account to join the conversation.

More
14 years 11 months ago #12226 by teach
Replied by teach on topic Re: NPLATE
I have been having a weekly injection of Nplate for a year now. At first I experienced some nausea and for a long time I had headaches. Now I have no side effects.

Please Log in or Create an account to join the conversation.

You’re not alone. We have answers! Contact PDSA to connect with life altering information, resources and referrals. 440.746.9003 (877.528.3538 toll-free) or PDSA@PDSA.org.

Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.

© Copyright 1997 - 2026, Platelet Disorder Support Association. All rights reserved.

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.