!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Blood from New Born Umbilical Cord?

More
15 years 1 day ago #11841 by osurjana
Blood from New Born Umbilical Cord? was created by osurjana
I heard from a relative that blood from a new-born umbilical cord can be used to treat ITP. Has anyone heard about this? She said no further explanation.
Thanks!

Please Log in or Create an account to join the conversation.

  • patti
More
15 years 1 day ago #11844 by patti
Replied by patti on topic Re: Blood from New Born Umbilical Cord?
The only time I've heard of using stem cells from an umbilical cord is for a stem cell transplant. Have a hard time believing someone would go through that for ITP.

Please Log in or Create an account to join the conversation.

  • Melinda
More
15 years 1 day ago #11848 by Melinda
Replied by Melinda on topic Re: Blood from New Born Umbilical Cord?
I've not heard of it. If I do a search I can't find anything. Wasn't fair of your relative to tell you that and then not give you more information, like where she heard it.

Please Log in or Create an account to join the conversation.

More
15 years 1 day ago #11850 by eklein
Replied by eklein on topic Re: Blood from New Born Umbilical Cord?
My uncle recently had a stem cell transplant for leukemia, maybe that is what the relative was thinking of.
Erica

And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

Please Log in or Create an account to join the conversation.

More
15 years 1 day ago #11855 by osurjana
Replied by osurjana on topic Re: Blood from New Born Umbilical Cord?
This person's son, who was the one that came across the information finally shared the web site with me. Yes! you are correct. It has to do with stem cell cord bank, to help diseases like leukemia and others, even diabetes. But no ITP. I find many people get ITP confused with other blood disorder, especially with leukemia.
Here's the website in case anyone is interested...
www.cordblood.com/cord_blood_banking_with_cbr/index.asp

Thanks!

Please Log in or Create an account to join the conversation.

  • Melinda
More
15 years 23 hours ago #11856 by Melinda
Replied by Melinda on topic Re: Blood from New Born Umbilical Cord?
You just don't know so you were right to ask.

I could swear I read something about ones own stem cells being injected [not a full transplant] - can't remember what for or how or where - how is that for giving good info :huh:

How is Gabe's count doing now?

Please Log in or Create an account to join the conversation.

  • patti
More
15 years 21 hours ago #11858 by patti
Replied by patti on topic Re: Blood from New Born Umbilical Cord?

Melinda wrote: I could swear I read something about ones own stem cells being injected [not a full transplant] - can't remember what for or how or where - how is that for giving good info :huh:


An autologous stem cell transplant uses one's own stem cells as the source of the transplant material. It too is used in leukemia/lymphoma cases.

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
15 years 19 hours ago #11864 by Sandi
Replied by Sandi on topic Re: Blood from New Born Umbilical Cord?
At any rate, it's a very dangerous procedure. I wouldn't consider it for ITP unless the ITP could not be controlled in any other way.

Please Log in or Create an account to join the conversation.

  • Melinda
More
15 years 19 hours ago #11866 by Melinda
Replied by Melinda on topic Re: Blood from New Born Umbilical Cord?

patti wrote:

Melinda wrote: I could swear I read something about ones own stem cells being injected [not a full transplant] - can't remember what for or how or where - how is that for giving good info :huh:


An autologous stem cell transplant uses one's own stem cells as the source of the transplant material. It too is used in leukemia/lymphoma cases.

No, I'm not talking about a stem cell transplant with donor or ones own stem cells - it's an injection as I mentioned, not a full transplant. It was into a joint for arthritis or a shoulder.

Please Log in or Create an account to join the conversation.

More
15 years 19 hours ago #11868 by eklein
Replied by eklein on topic Re: Blood from New Born Umbilical Cord?
My uncle had to get someone else's stem cells for his leukemia. It was the whole deal with killing off his own immune system etc. He is now battling rejection.
Erica

And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

Please Log in or Create an account to join the conversation.

More
14 years 11 months ago #11887 by tigereyes
Replied by tigereyes on topic Re: Blood from New Born Umbilical Cord?
I wanted to discuss with my hema what he felt about transfussing the cord blood into me after I have the baby. Not like a stem cell transplant but the pregnancy has been good to me and my body and maybe whatever those antibodies are doing maybe a little extra wouldnt hurt. Just something Ive been pondering.

Jennifer

Mother of 2 boys
Last Rituxan 12/09/09--3rd time around with not much sucess
Winrho-09/25/09 Didnt work.
IVIG--Countless times

Latest counts 8 4/2013-just started Promatca
Diag. 9/2006

Please Log in or Create an account to join the conversation.

  • Melinda
More
14 years 11 months ago #11896 by Melinda
Replied by Melinda on topic Re: Blood from New Born Umbilical Cord?
I was wondering about you the other day so it is good to see you! It would be interesting to know what your hematologist says so let us know.

Please Log in or Create an account to join the conversation.

More
14 years 11 months ago #11936 by tigereyes
Replied by tigereyes on topic Re: Blood from New Born Umbilical Cord?
Im still here just lurking mostly. 30 weeks so far. Im going in for another fetal growth tomorrow. I have yet to gain weight so the doctors want to check on the baby.

Jennifer

Mother of 2 boys
Last Rituxan 12/09/09--3rd time around with not much sucess
Winrho-09/25/09 Didnt work.
IVIG--Countless times

Latest counts 8 4/2013-just started Promatca
Diag. 9/2006

Please Log in or Create an account to join the conversation.

  • Melinda
More
14 years 11 months ago #11953 by Melinda
Replied by Melinda on topic Re: Blood from New Born Umbilical Cord?
Keep us posted ok?!

Please Log in or Create an account to join the conversation.

You’re not alone. We have answers! Contact PDSA to connect with life altering information, resources and referrals. 440.746.9003 (877.528.3538 toll-free) or PDSA@PDSA.org.

Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.